bis ich nicht mehr laufen konnte, hieß es, ich hätte nichts.

#jederTagMECFS #MECFS #LongCovid #MEAwarenessHour

#MECFS is a severe illness that affects tens of millions of people. To date, there is no cure and no understanding of the pathology. This challenge can be solved, if we put our minds to it and provide funding for research. In the meantime, patients need support. #MEAwarenessHour

New critical publication! ICYMI Dutch Ruppersberger Senator Chris Van Hollen Senator Ben Cardin 'A Home for IACCIs at NIH' is now available. Read more at: ow.ly/eISC50R4CGu #StopTheLongHaul #MEAwarenesshour p2a.co/twitterimage?i…

Light sensitivity in people with M.E. What causes it? No easy fix but this is helpful:-
#MEAwarenessHour #pwME

Too true #MEAwarenessHour

Is it just me thinking how wonderful it is that The Notre Dame in Paris is restored within five years, yet unable to grasp how this might look to those suffering with ME in France?

How few things have happened for #pwME generally worldwide during this period... #MEAwarenessHour

It's Advocacy Week 2024 Social Media Action Day! Follow the link to use our Social Media & Remote Action Kits and educate Congress w/ emails, phone calls & social posts. #StopTheLongHaul . Please share posts btwn 12-1 pm PT for #MEAwarenessHour visibility! ow.ly/I3Se50RinH6

This is such a great piece of work #MEAwarenessHour

Such excellent wisdom. #MEAwarenessHour

.Rep. Elissa Slotkin Sen. Debbie Stabenow Senator Gary Peters Have you read this new publication about NIH funding for up to 73.3 million Americans? Check it out today:
#MEawarenesshour
ow.ly/eISC50R4CGu p2a.co/twitterimage?i…

#pwME & our allies will be taking our outrage, anger, grief, our fear & our desperation at what's being done to #Carla by NHS to this Twitterstorm tomorrow at 11am & we need you to join us using the hashtags # #SaveCarlasLife & #ExposeMENow

#MEAwarenessHour

This is soo important. Please read, share and sign. Send copy to your local councillor too, ask them to sign. Thanks to ME Foggy Dog 💙 for the hard work getting it this far at cost to her own health. #pwME #MEcfs #MEAwarenessHour

Tonight is #MEawarenessHour

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has. - Margaret Mead

20:00 BST 21:00 Europe
All welcome
#MyalgicEncephalomyelitis

Lisa_Cat🙏

Thanks George Monbiot
#MEAwarenessHour #MECFS
#SaveCarlasLife #BringMillieHome #SevereME
#MyalgicEncephalomyelitis #ChronicIllness

#MEAwarenessHour #SaveCarlasLife
Carla is the latest woman with her life in the hands of the NHS because she has #MyalgicEncephalomyelitis yet she is being openly neglected because they don’t know how to treat her. #ExposeMENow

🌻 Share Like RT posts during #MEAwarenessHour in 11 hours time🌻

20:00 BST 21:00 Europe CEST

Talking all things #MyalgicEncephalomyelitis

#pwME please sign/RT letter here:
organise.network/actions/petiti…

Poster credit: Lisa_Cat 🙏

Viele können mit Mecfs nicht mehr raus.
Eine liebe Freundin hat für uns wieder gestickert💜
#MeAwarenessHour

PS: Generell (& ganz unabhängig von Mecfs) wäre für viele Menschen wieder mehr Teilhabe möglich, wenn auch Bars & Kneipen sich für mehr Lufthygiene einsetzen würden.

'Now we need an inquiry into the systematic mistreatment and abuse of ME/CFS patients...'
#MEAwarenessHour #MyalgicEncephalomyelitis

In case you're searching for the link as I did, here it is

organise.network/actions/petiti…

#MEawarenessHour
#MECFS #MillionsMissing