UPDATE: #SaveCarlasLife - it seems the hospital are finally doing something positive - but still not quite enough - plus #BringMillieHome
FYI transcript of the video in reply below:
WESTMINSTER HALL DEBATE ON #MEcfs
As promised please find below an open letter everyone can sign asking Sajid Javid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate
We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour
Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
Steve is currently at West Middlesex Hospital speaking to Carla's family and will be giving a full update on Carla and her situation this evening. #SaveCarlasLife
Brilliant. Powerful video. Well done WE&ME Foundation
We are prisoners of a disease and some of us become prisoners in hospitals too. Deprived of basic human rights because doctors refuse to understand our condition.
#SaveCarlasLife
#BringMillieHome
#SaveAllegra
#pwME
Right now, three women are suffering medical abuse and gaslighting in UK hospitals because there are no guidelines for Severe ME. This is life threatening. Please speak up about this!!
#SaveCarlasLife
thecanary.co/uk/analysis/20…
We won’t improve access to care for #verysevereME #SevereME without a protocol.
#savemillie #SaveCarlasLife Karen and others in the same position need help fast. This should have been in place decades ago. Please sign and share
organise.network/actions/petiti…
#SaveCarlasLife #BringMillieHome some updates and what's been, and will be, going on...