I can't the the only Black person here with

#MyalgicEncephalomyelitis . I don't want to tag of the 3 Black people #onhere that have told me they do.

So if you have the energy to talk about it, welcome.

Allies thanks for adding people but please no bulk tags.
#WorldMEDay

Sending love to everybody affected by ME/CFS. It’s a long-term condition with a wide range of symptoms. Unless somebody has this condition they don’t know how exhausting it can be.

#MEAwarenessDay #MECFS #MECFS Awareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Meet David 👋 He’s cared for me with compassion, skill, intelligence, and kindness. Advocacy I do for #MyalgicEncephalomyelitis is possible because of his constant behind-the-scenes work. Some years he was my 24/7 carer. Gave up career & more to help me survive & keep fighting 1/

In 2019 my dad died the day after #MEAwarenessDay and I couldn't go to his funeral. This year I've become my mum's carer-from-a-distance. No siblings and bedridden.
The people who delayed research have more to answer for than they'll ever know.
#MyalgicEncephalomyelitis #pwME

How #MyalgicEncephalomyelitis shrinks your world...

Illustration by Kornelia Paulsen

#pwME
#MillionsMissing
#WorldMEDay
#MEAwarenessDay

Alice turned 20 today, this is her 9th Birthday bedridden with #verysevereME
Alice finds it hard to fathom how she’s 20 when she still feels like she should be 11. Age 11 was the last time she was “living” #pwME #dontforgetME #Meawarenessday #ME #MyalgicEncephalomyelitis

Brilliant 👏

(By ImAliceElla)

#ME AwarenessMonth #pwme #ME #MyalgicEncephalomyelitis

ICYMI, for #WorldMEDay we debuted a new video. youtu.be/h_PlrK0Nprg?si…

#TeachMETreatME is a campaign to educate clinicians & med students about #MyalgicEncephalomyelitis (ME aka #MECFS ).

Please join in today. Info at millionsmissing.org

#MillionsMissing #pwME

Health workers claim Scotland is ignoring those affected by Long Covid with gaslighting and discrimination throughout the NHS.
meassociation.org.uk/dlmr
#MECFS #MyalgicEncephalomyelitis #LongCovid

Stormont lit in blue last night in recognition of #WorldMEDay & a few hours after Hope 4 ME & Fibro NI protest at the main gates. What a day! Thanks to my brilliant hubby Chris Logan for going back to get this 📷. #GlobalVoiceForME #DiscoverME #MEAwareness #MyalgicEncephalomyelitis

For #MEAwarenessDay , I’ve written a poem to try to express how I’ve felt at my worst. It’s sad, it’s dark, it’s certainly not sugar coated. This is the reality of people living with #MyalgicEncephalomyelitis #pwME #MECFS #LongCovid #PEM

In 2021 my Kaiser MD said to me:
'Even if chronic fatigue syndrome was real there's no test, treatment, or cure. You need to exercise and lose weight. If you want to give a name to how you feel, you can call it whatever you want.'
40 yrs w/ #MyalgicEncephalomyelitis
#pwME

55 years since #MyalgicEncephalomyelitis was recognised by World Health Organization (WHO)….at least 55m ill today. A global health crisis happening right now.
World ME Alliance working together, calling for recognition, respect and research on #WorldMEDay .
Join us #GlobalVoiceforME

Most popular read this week: A new study of patients with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome adds weight to the growing evidence suggesting this long-misunderstood disease is a neuroimmunologic disorder: bit.ly/4azLw22

#NeuroTwitter @AANMember

5 years ago to the day. Still demanding. 😣 #MECFS #MEAwarenessDay #MyalgicEncephalomyelitis

The prestigious Centers for Disease Control and Prevention (CDC) in the US have released their ME/CFS International Awareness Day (May 12) page for 2024

cdc.gov/me-cfs/resourc…

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

It's World ME Day - #MyalgicEncephalomyelitis is more common than you realise. It is EVERY health professional's duty to be aware of how to work safely with #pwME

#WorldMEDay
Chartered Society of Physiotherapy Chartered Society of Physiotherapystudents World Physiotherapy Royal College of Occupational Therapists

Apparently it's World M.E day.

Or #MyalgicEncephalomyelitis

For anyone interested, I suggest looking into it. Remember I mentioned my wife has health issues?

That's her primary one. :)

Reposting my reply for anyone Professor Garner has blocked. #MECFS #pwME #pwLC #LongCovid #chronicillness #MyalgicEncephalomyelitis

Still missing after 3 decades. Still trying to cope with soul crushing exhaustion. Still trying to endure a cluster of symptoms that leaves me feeling utterly broken. #MEAwarenessDay #MillionsMissing #MyalgicEncephalomyelitis