Lying flat, doing absolutely nothing. With a HR of 215. However, Alice has been awake for OVER 140hrs, could this be making it worse? 🤪😭 #VerySevereME #PoTS #vasculardysfunction #pwME #NEISvoid #insomniac #tachycardia #hEDS #severeME
This is my 1st year of #MECFS vs now, nearly 3 years later with very severe ME. It doesn't matter how healthy you were, once you get #severeME your life as you know it is over. I'm bedridden and unable to speak at 25. WE NEED TREATMENTS NOW #WorldMEDay #MEAwarenessDay
A patient with #severeME uses hand signals on her mattress to communicate with her carers.
For many with Long COVID and ME, this is what life looks like.
#MedTwitter you don't see these patients because they can't come to your clinic.
#UniteToFight2024
Update about Millie
Petition
change.org/p/save-millie-…
#MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow
I can’t remember ever seeing much about a difficulty with swallowing in the symptom lists of #MyalgicEncephalomyelitis but it is a symptom that many people with #ME especially #SevereME experience.
#ME AwarenessDay
#WorldMEDay
#MillionsMissing
I don’t really have any words other than that you should really watch this.
It shows the reality of #SevereME . The prison of ME. When will the prison sentence end?
Teared up at the bit where Anil was able to witness the seasons changing again.
#MEAwarenessDay #MEAwarenesss
ME symptoms can lead to nutritional problems, particularly in #SevereME .
#MEAwarenessWeek #EndMalnutritioninME