It can be hard to navigate the NICE guidelines when experiencing brain fog or too weak to read, so I have screen shots of relevant passages
These are for #pwVSME regarding hypersensitivities
#SaveCarlasLife
#ExposeMENow
#BringMillieHome
#DontLetMEDie
#pwME
@TheChronicCollaboration Please 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 as an ally of #pwME please help. This is beyond distressing for Carla and her family and disregards the NICE guidelines on hospital care for patients with Very Severe ME
(Screen shot is relevant excerpt of guidelines)
#SaveCarlasLife
#ExposeMENow
Petition update · An update about Millie from her family · Change.org · Change.org #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie change.org/p/save-millie-…
Carol Monaghan MP 🏴 🇺🇦, so grateful for your ongoing support. Can you and your colleagues on the APPG for ME please intervene in Carla's and Millie's cases? #pwME can't continue to receive cruel out-of-date treatment. NICE guidelines are being ignored. #SaveCarlasLife #BringMillieHome
Update about Millie:
Petition
change.org/p/save-millie-…
Fundraiser
justgiving.com/crowdfunding/b…
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
Rory’s made a webdoc to make it easier for us to support emailing [email protected] asking for ME to be included in the proposal. Please do this including your own story or add your own thoughts.
Thanks so much
#MyalgicEncephalomyelitis #PWME
Thank you Rory
Seema Malhotra is the MP in this area. Any #pwME who are constituents that can write to her? I can help with a letter if needed
#SaveCarlasLife
#ExposeMENow
#SaveCarlasLife
#ExposeMENow
More details about the horrendous treatment of #pwME Carla.
Where is the APPG? Where is her MP? Where is the support of our charitable organisations for her?? How many more???