New from Canada:
Complex Chronic Diseases Program: Program Description & Health Outcomes Assessment from a Clinical Data Registry

Free:
medrxiv.org/content/10.110…

All in the analyses had ME/CFS +/or #Fibromyalgia

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

May's crowdfunder is within sight of the goal, with a few days left in the month. This is by far the least appealing aspect of my work, but it allows me to keep busting the psychosomatizers whose views are harmful to patients' wellbeing.
crowdfund.berkeley.edu/project/42302

🚨 Call to action!

Starting this summer, WE&ME Foundation will pursue corporate partners for the #MECFS cause. A strong social media presence is one of the most important factors helping us to secure partnerships.

Please hit the follow button on Twitter, IG & FB! Please RT! ❤️🙏

Today, Dr. Bertagnolli Dr. Monica M. Bertagnolli stated: '... I want to say about Long COVID and ME/CFS: we are so grateful for our partnership with the people that are affected by this. They have taught us over the last two years what we needed to do, now we just need to deliver for them.'

New billboards for our ME/CFS awareness campaign are now visible in the city center of Vienna. They are located in some of the most frequently passed pedestrian areas. Let's make ME/CFS more visible together!

To everyone in Vienna: Have you spotted our campaign yet? 💙🙏🏼

'The Dutch Brain Bank is starting a brain donor program for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to make brain tissue available for research into ME/CFS.'

Only for people in the Netherlands I think.

herseninstituut.nl/nieuws/nederla…

🧵Clips from BBC File on 4 episode on #LongCovid & investigation into the Lightning Process

Rachel Schraer went undercover & was told there was nothing wrong with her body. Dr @CamillaLNord Neuroscientist at Cambridge described it as a 'Wild claim that's impossible to believe.'

Last week UniteToFight2024 aired this talk about the trauma pwLC, ME/CFS and PAIS suffer - and how we can look forward.

People from all over the world responded thay they felt recognized, the major goal.

Therefore sharing it again.

#medtwitter #trauma

vimeo.com/944252145

The new (long awaited) 1st e-learning module ‘Introduction to ME/CFS’ is now completed & available to all. You may need to register your email but all are accepted.

Please share widely!

#MedEd #pwME British Psychological Society BPS DHP Division of Clinical Psychology Joan Crawford

learninghub.nhs.uk/catalogue/mecf…

.NINDS has laid out a plan for research on #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome with the release of a new Research Roadmap Report: bit.ly/3ypUDUF

#MECFS

The highly pro-inflammatory and pervasive microplastics and nanoplastics: previously found in arteries and associated with increased in heart attacks and strokes, now in all human testes that were assessed.
theguardian.com/environment/ar…

New
'Predictors of Postviral Symptoms Following Epstein-Barr Virus-Associated Infectious Mononucleosis in Young People'

medrxiv.org/content/10.110…

'A clinical history of immune dysregulation [&] distinct severe IM symptoms might predict protracted post-viral disease'

#PvFS #MEcfs

For the upcoming European elections from 6 - 9 June, we have created an “ME/CFS pledge” to ensure that the European Commission acts on resolution 2020/2580(RSP)).

We hope that as many EU parliamentary candidates as possible will support this pledge.

🔗europeanmecoalition.com/the-me-cfs-ple…

1) Interesting new study from Canada from the research team of Dr. Luis Nacul.

The authors recruited participants from ‘CanPath’: a population-based cohort that includes data from over thousands of Canadians.

What in all holy hell is this?

trialsjournal.biomedcentral.com/articles/10.11…

The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary
discussion of current ME/CFS research, organized by the NIH.

ninds.nih.gov/sites/default/…

TOMORROW: The #MECFS Research Roadmap will be discussed during the NANDSC meeting on May 15. The open portion of the meeting will begin at 10am ET & the Roadmap will be presented from 1:30 – 2:30pm.

Videocast: videocast.nih.gov/watch=54421

Event page: ninds.nih.gov/news-events/ev…
#NIH

📌 Pinned Tweet 2.0 (meant to be shared)

#UniteToFight2024

Largest global #LongCovid & #MECFS Conference

✅ Free access
✅ 100% online
✅ Inclusive and interactive

📅 Date: 15th-16th of May 2024
9:00 am-7:15 pm (CEST)

More than 35 speakers from all over the world 🌍

More

You are invited to our annual Awareness Event taking place TOMORROW, May 14, at 1 pm MDT on Zoom.
Register here: batemanhornecenter.zoom.us/meeting/regist…

#MEAwareness #LongCOVIDAwareness #FibromyalgiaAwareness #pwME

Only 3 days left! 😱 until #UniteToFight2024 - the largest long COVID and ME/CFS conference

The last preliminary talks
The last technical checks

And the last chance to tell many people about the conference.

Let’s go all in! 🔥

Register here: unitetofight2024.world