All this in the face of govt plans to scale back dedicated long Covid services next year. Families say they are left without medical help & then forced to deal with disbelief & authorities threatening to take their children away

Thank you to Jessica for sensitively working with families facing allegations of FII to get their stories out. #LongCovidKids

Following on from last week’s #FIIAwarenessWeek we hope families facing allegations of Fabricated and Induced Illness will find our blog helpful. longcovidkids.org/post/my-child-… #LongCovid Kids #LongCovid

Pleased to share insights from Long Covid Kids - #LongCovidKids at this Westminster Forum Projects forum packed with dedicated individuals discussing ‘Next Steps for #LongCovid care and research in England.

Chaired by Lord Bethell Wendy Chamberlain MP

#Health #WHEvents #MECFS #ChildHealth #LongCovid Kids #Charity

1000's of families discuss #PEM in the #LongCovid Kids support service, it is clear that understanding #PEM is key in our understanding of #LongCovid

Rob Wüst 🙏🏼 on now.

#UniteToFight2024 UniteToFight2024
#LongCovid #LongCovid Kids #Exercise #PESE

With UniteToFight2024 in full flow here is a reminder to researchers to remember the kids.
Check out The Post-COVID Core Outcome Set for Children and Young People.

Dr Daniel Munblit
pc-cos.org/children
#UniteToFight2024 #LongCovid #LongCovid Kids #Researchproject

Wonderful news, well done PoTS UK team. Now all the #LongCovidKids with a concurrent PoTS diagnosis can get their GP to code this on their records.

We are delighted to have been selected as charity of the year at Gravita
Thank you all so much for supporting us.

With great thanks to Jana Touati Mikusova for nominating us & for being an incredible member of our volunteer team.

#Longcovidkids #charityoftheyear

Welcome everyone to #UniteToFight2024 week 📆🤩

We hope you are looking forward to it as much as we are. There are only 46 hours left until the opening ceremony begins.

For a bit more Monday Motivation, we’re sharing the song written by Pete Caruso again

'How #LongCovid is described impacts perception of aetiology and legitimacy'

When we use the right #language to describe symptoms/consequences we can help #children , young people and their #caregivers learn too.
#LongCovid Kids
#Education
#MECFS
x.com/Dr2NisreenAlwa…

Rosie is an amazing young woman, using her experience to advocate for all young people.
Children & YP around the 🌎 remain unprotected from #COVID & preventable related illnesses.

#CleanAir in schools is an essential part of the solution.
#LongCovid Kids #LongCovid #MECFS

I wonder how all of the Long Covid Kids and Clinically Vulnerable kids feel about this poll…?

Long Covid Kids - #LongCovidKids Clinically Vulnerable Families 💙💜💗

A former champion Irish dancer who has covid-induced ME, was among a crowd of protesters at Stormont today, calling for better support for those with the condition. 19-year-old Rosie Pidgeon now uses a wheelchair to manage her pain and fatigue. Lyndsey Telford reports.

#meawarenessday

Today marks 55 years since the World Health Organisation officially acknowledged M.E. in their International Classification of Diseases

We stand in support with all those diagnosed with or experiencing the symptoms of M.E.

#longcovidkids #ME

Smashing it two days in a row Alex Cole-Hamilton MSP🔶🇺🇦 💥🙌🏼

Alex highlights #LongCovid #LongCovid Kids on BBC debate night 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Hundreds of thousands of Scots suffering; unable to work, unable to study, go to school, unable to access care or treatment via the NHS, isolated & abandoned.

❤️STRONGER TOGETHER❤️ making one quick call will help our entire community create a directory of places we can access safer healthcare. 65 seconds to help 65 million. We can do this, please support us and pick up the phone. safeinside.co.uk/month-of-noise #safeinside

Thank you for getting #LongCovid #LongCovid Kids into your speech, Alex.

Hugely appreciated that you, Jackie Baillie & Dr Sandesh Gulhane MSP keep our community relevant and keep pushing for better support & treatment to be available.

More #LongCovid Kids are joining our ranks every day 🥺

OUR WEBSITE IS LIVE

#MEAwarenessHour #TheChronicCollaboration

We hope this moment will be the start of a sea change for #ChronicIllness communities. We're determined it will be. Please have a look at the website, support it if you can, & do share.
thechroniccollaboration.com