Welcome Dr. Peter Marks, MD, Ph.D., Director, CBER, FDA, as Keynote speaker at Indo US Bridging RARE Summit 2024, New Delhi, Nov 16-18. Join us!
For more updates, visit:
buff.ly/4aGUWs9
#IndoUSrare #BridgingRARESummit #RareDisease #bridgingrare #bridge4rare
Today May 15th is International #Vasculitis AwarenessDay #Vasculitis #RareDisease
So we thought we would share a memory from Vasculitis Awareness Day 2021 youtube.com/watch?v=mJ0P5R…
Take a moment to watch and listen to John’s take on #VisualisingVasculitis
In honor of #HAE Day, we are sharing Shanna’s story to help you learn more about this #raredisease . It took 4 years for Shanna to learn they had hereditary angioedema — years that included confusion and uncertainty. Learn more about HAE here: bit.ly/3ROZkP4 #active4HAE
Thank you all for coming together for a fantastic #ProDGNEmeeting2024 in Cagliari and online!
📸Dive into some great pictures and moments from the event and stay tuned for more updates!
#GNEMyopathy #RareDisease EJP RD - European Joint Programme on Rare Diseases #JTC2020
Standing ovation tonight for Durhane Wong-Rieger as the recipient of the Life Sciences Ontario Leadership Award.
A well-deserved honour for her incredible work for Canada’s (and the world’s!) #raredisease community and her advocacy efforts #cdnhealth
Excited to help co-create a #MentallyHealthy toolkit for #RareDiseases ✨ Great to see such amazing things like this come out of #ECRD2024 🤝
Explore the role of patient registries in supporting clinical trials on #RareDisease at the upcoming webinar by IMPaCT/RareKids-CAN. Save your virtual seat for May 22 at noon!
buff.ly/4ahViox
🗓️ May 22
⏰ 12:00 PM ET
Happy to participate in this amazing contribution to the characterization of the local genetic vaiability of the Spanish population mdpi.com/2073-4425/15/5… More tools for #raredisease diagnosis and research. Fundación Progreso y Salud IBiS CIBERER INB / ELIXIR-ES Asociación Española de Genética Humana (AEGH)
May is #vasculitis #awareness month.
On day 15 we celebrate the International Vasculitis Awareness Day
Vasculitis is a rare chronic autoimmune rheumatic disease and I live with it.
#VisualiseVasculitis #RareDisease
Vasculitis UK - In memory of John Mills MBE 💙💚 VIA VIA Jane L Edwards 📚
#PETscan technique developed by NIDCR @NIH & NIH Clinical Center allows researchers to monitor calcium buildup in the arteries of patients with a genetic #raredisease that causes abnormal deposits of phosphate & calcium in the body. ahajournals.org/doi/epdf/10.11… ATVB: An AHA Journal
The Jackson Laboratory (The Jackson Laboratory) receives $8 million in federal funding to expand research capacity in #RareDiseases .
Read at bit.ly/4b6elTT
#PressRelease
What sets Calliditas apart? Our commitment to expertise and collaboration in #RareDisease . We have continued to build a team of dedicated professionals all with one common goal: to pioneer treatments for rare diseases. Hear more from our CEO, Reneé Aguiar-Lucander.
Katika kuendelea kupata maarifa ya Magonjwa adimu na kuwaelimisha wengine..April 24 nlishiriki #Raredisease symposium iliyokua na theme ya 'Bridging gaps in Rare Disease care'tulipata kusikia insights kutoka Tanzania na Netherlands 🇳🇱...
Happy Birthday to all of our NGLY1 May birthdays! Everyone born in this month are like blooming flowers, their beauty and grace is a delight to behold. #NGLY1 #RareDisease #Birthdays
Tomorrow - Friday - we wear blue and Shine a Light/Candle to recognise & raise awareness of Nerve Tumours & everything that goes with it..............so we will be wearing blue!! #ukrunchat #running #family #awareness #raredisease
🤰Are you managing pregnant patients with #lymphedema ? Our Do's & Don'ts factsheets offer expert recommendations to guide you. Check out these 4 key recommendations and click the link below for the full factsheet!
👉bit.ly/doanddontsppl #Pregnancy #healthcare #rarediseases
morning — for those who, like me, again need respite
finding some stillness in nature
overcast with some blues
Cardigan Bay ( #OTD )
I return to the sea
#blues
#dawn #landscapephotography #seascape
#Mindfulness
#neurodegenerative #raredisease #CBD #PSP
