Melissa Kinch(@Melissa_Kinch_) 's Twitter Profile Photo

Excited to present my research orally and via poster at the 12th European Conference on Rare Diseases and Orphan Products on 15 & 16 May 2024! The largest, patient-led, rare disease policy-shaping event held in Europe invt.io/1txb4tac6p9

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EATRIS(@EatrisEric) 's Twitter Profile Photo

EATRIS is excited to be an Associate Partner of - the European Conference for & Orphan Products taking place in Brussels on 15-16 May 2024 & online. Hosted by the patient-driven rare disease alliance @EURORDIS.

👉 More here: eatris.eu/events/12th-eu…

EATRIS is excited to be an Associate Partner of #ECRD2024 - the European Conference for #RareDiseases & Orphan Products taking place in Brussels on 15-16 May 2024 & online. Hosted by the patient-driven rare disease alliance @EURORDIS.

👉 More here: eatris.eu/events/12th-eu…
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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Bringing a renewed focus 💪

In our 6th and last parallel session, participants will be delving into case studies of good practices in designing, monitoring and implementing healthcare measures!

Don’t want to miss out! ➡️go.eurordis.org/hVPVPA

Bringing a renewed focus 💪

In our 6th and last #ECRD2024 parallel session, participants will be delving into case studies of good practices in designing, monitoring and implementing healthcare measures!

Don’t want to miss out! ➡️go.eurordis.org/hVPVPA
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toon digneffe(@DigneffeToon) 's Twitter Profile Photo

EURORDIS-Rare Diseases Europe⁩ Proud to have contributed to the programme of the upcoming ECRD conference. Looking forward to seeing many of you there ! linkedin.com/posts/toon-dig…

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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Of the 350 million people living with a rare disease, over 50% are undiagnosed.

Register for to be the first to hear about the results of the latest Rare Barometer survey on the diagnostic odyssey of people living with a rare disease! ➡️ go.eurordis.org/hVPVPA

Of the 350 million people living with a rare disease, over 50% are undiagnosed.

Register for #ECRD2024 to be the first to hear about the results of the latest Rare Barometer survey on the diagnostic odyssey of people living with a rare disease! ➡️ go.eurordis.org/hVPVPA
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VASCERN(@vascern) 's Twitter Profile Photo

Connect with other patients, advocates, and experts to share experiences and build a support network at the upcoming ECRD on 15 & 16 May 2024! Members of our network get 15% off with the promo code: ECRD24_15%_Partners

👉Get your tickets now! invt.io/1txbfudcc00

Connect with other patients, advocates, and experts to share experiences and build a support network at the upcoming ECRD on 15 & 16 May 2024! Members of our network get 15% off with the promo code: ECRD24_15%_Partners

👉Get your tickets now! #ECRD2024 invt.io/1txbfudcc00
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MetabERN(@Metab_ERN) 's Twitter Profile Photo

The European Conference on Rare Diseases and Orphan Products (ECRD) is the largest, patient-led, policy-shaping event held in Europe.
Register for , taking place on 15-16 May 2024 online and at The Square in Brussels!
ℹ buff.ly/2XgA6uw

The European Conference on Rare Diseases and Orphan Products (ECRD) is the largest, patient-led, #raredisease policy-shaping event held in Europe.
Register for #ECRD2024, taking place on 15-16 May 2024 online and at The Square in Brussels!
ℹ buff.ly/2XgA6uw
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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Join the second Thought Leader Session, co-powered by @‌Together4RD and the Rare Disease Moonshot.

🗓️ 3 May 2024
⏰ 3:00pm CEST
👉 go.eurordis.org/jDRAD2

Free to all - conference registrants not automatically registered.

Join the second #ECRD2024 Thought Leader Session, co-powered by @‌Together4RD and the Rare Disease Moonshot.

🗓️ 3 May 2024
⏰ 3:00pm CEST
👉 go.eurordis.org/jDRAD2

Free to all - conference registrants not automatically registered.
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

We're very proud to be partnering with EURORDIS-Rare Diseases Europe on the upcoming ECRD on 15 & 16 May 2024! Register now! Members of our network get 15% off with the promo code: ECRD24_15%_Partners
Get your tickets now! invt.io/1txbm76cqw8

We're very proud to be partnering with @eurordis on the upcoming ECRD on 15 & 16 May 2024! Register now! Members of our network get 15% off with the promo code: ECRD24_15%_Partners
Get your tickets now! #ECRD2024 invt.io/1txbm76cqw8
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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Advancing Access 💊

This session will dive into the dynamic landscape of healthcare legislation and treatment access, navigating through key regulatory frameworks and innovative approaches.

Less than one month to ! Secure your spot! ⬇️
go.eurordis.org/hVPVPA

Advancing Access 💊

This #ECRD2024 session will dive into the dynamic landscape of healthcare legislation and treatment access, navigating through key regulatory frameworks and innovative approaches.

Less than one month to #ECRD2024! Secure your spot! ⬇️
go.eurordis.org/hVPVPA
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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Join the third and final Thought Leader Session!

💬 The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease
👀Featuring the exclusive release of the Commission's new global framework!

🗓️ 7 May 2024
⏰ 2:00pm CEST
👉 go.eurordis.org/jDRAD2

Join the third and final #ECRD2024 Thought Leader Session!

💬 The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease
👀Featuring the exclusive release of the Commission's new global framework!

🗓️ 7 May 2024
⏰ 2:00pm CEST
👉 go.eurordis.org/jDRAD2
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European Brain Council(@EU_Brain) 's Twitter Profile Photo

Will you attend the 12th European Conference on Rare Diseases & Orphan Products, the largest, patient-led, policy-shaping event held in Europe?

📅 15-16 May 2024
📍 Brussels & Online

Early bird fees are available until 2 February👉 bit.ly/48Eaa0v

Will you attend the 12th European Conference on Rare Diseases & Orphan Products, the largest, patient-led, #RareDisease policy-shaping event held in Europe? #ECRD2024

📅 15-16 May 2024
📍 Brussels & Online

Early bird fees are available until 2 February👉 bit.ly/48Eaa0v
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JWMDRC(@jwmdrc) 's Twitter Profile Photo

We're very proud to partner with EURORDIS-Rare Diseases Europe on the upcoming 12th European Conference on Rare Diseases & Orphan Products.

15 & 16 May and fully hybrid for the first time!

Register now! Members of our network get 15% off ticket price with code: ECRD24_15%_Partners

We're very proud to partner with @eurordis on the upcoming 12th European Conference on Rare Diseases & Orphan Products.

15 & 16 May and fully hybrid for the first time!

Register now! Members of our network get 15% off ticket price with code: ECRD24_15%_Partners

#ECRD2024
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EATRIS(@EatrisEric) 's Twitter Profile Photo

EATRIS is excited to be an Associate Partner of - the European Conference for & Orphan Products taking place in Brussels on 15-16 May 2024 & online. Hosted by the patient-driven rare disease alliance @EURORDIS.

👉 More here: rare-diseases.eu

EATRIS is excited to be an Associate Partner of #ECRD2024 - the European Conference for #RareDiseases & Orphan Products taking place in Brussels on 15-16 May 2024 & online. Hosted by the patient-driven rare disease alliance @EURORDIS.

👉 More here: rare-diseases.eu
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EURORDIS-Rare Diseases Europe(@eurordis) 's Twitter Profile Photo

Step through a portal to another world! 🌀

What magic can you expect from ? Find out directly from the event’s lead coordinator, our Open Academy & Events Director, Sharon Ashton!

Read the full article: go.eurordis.org/U1OKT2

Step through a portal to another world! 🌀

What magic can you expect from #ECRD2024? Find out directly from the event’s lead coordinator, our Open Academy & Events Director, Sharon Ashton!

Read the full article: go.eurordis.org/U1OKT2
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ERN TransplantChild(@TransplantChild) 's Twitter Profile Photo

The 12th Edition of the European Conference on Rare Diseases & Orphan products (ECRD) will take place on 15-16 May 2024 in Brussels and online.

Registration: events.eurordis.org/ecrd2024

The 12th Edition of the European Conference on Rare Diseases & Orphan products (ECRD) will take place on 15-16 May 2024 in Brussels and online.

Registration: events.eurordis.org/ecrd2024

 #ECRD2024
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Share4Rare(@Share4Rare) 's Twitter Profile Photo

🌍 Save the Date for the 12th European Conference on and Orphan Products !

📅 15-16 May 2024
📍 The Square, Brussels, and ONLINE 

Patients, organisations, and advocates, this is YOUR event 🤝 rare-diseases.eu 

🌍 Save the Date for the 12th European Conference on #RareDiseases and Orphan Products #ECRD2024!

📅 15-16 May 2024
📍 The Square, Brussels, and ONLINE 

Patients, organisations, and advocates, this is YOUR event 🤝 rare-diseases.eu 
#ActRare2024 #EU2024BE
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Genetic Alliance UK(@GeneticAll_UK) 's Twitter Profile Photo

Sessions at this years conference, on 15 and 16 May 2024 include innovative funding models, mental health and highly specialised care.

Take a look and get your online, or in-person tickets now.
ow.ly/QVQO50QXoVn

Sessions at this years #ECRD2024 conference, on 15 and 16 May 2024 include innovative funding models, mental health and highly specialised care.

Take a look and get your online, or in-person tickets now.
ow.ly/QVQO50QXoVn
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