Hey #patientengagement #patientpartnership friends: does anyone have any examples of hospitals partnering with patients on policy creation? And any information on how they’ve gone about this? Julie Drury

The Patients Association and Patient Information Forum (PIF) have published a new report on removing barriers to shared decision-making. 📣

Based on a co-production project in Nottingham, the report outlines key findings and shares recommendations to support shared decision making. patients-association.org.uk/Blog/removing-…

Why not join this important webinar on #MakingADifference for people affected by #dementia this week
#PatientPartnership #PersonalisedCare

Take a look at Patients Association, Patient Information Forum (PIF) and NHS Nottingham and Nottinghamshire report on #SharedDecisionMaking for #patients on the #MSK pathway
#PatientPartnership

As part of the Patients Association #PatientPartnership week of events, we're tuning in this morning to hear from England's Patient Safety Commissioner, Dr Henrietta Hughes Patient Safety Commissioner & Rachel Power on why partnership means > patient safety.

Lisa Koester, NP, shares 20 years of insights on home hemodialysis, including needle phobia, care partner burnout, and infection risk. Learn why she is still a strong advocate.

// #NursePractioner #Hemodialysis #HRQoL #PatientAdvocate

This is today! 💙

I’ll be talking a bit about #MECFS , but mostly about #Research & #PatientPartnership - why it matters (especially for stigmatized, complex, chronic illnesses like ours) and some tips that might help researchers better connect with us.

💙

Gill Phillips Patients Association Patient Safety Commissioner Helen Hassell Yvonne Newbold MBE And to celebrate #PatientPartnership week, looking forward to publishing new podcast on Sunday: @whoseshoes chatting with fab Rachel Power re partnership, shared decision making, #coproduction (whatever you call it, just do it!) #JFDI ♿️🏳️‍🌈Cristina Serrão she/her 🇪🇺🇵🇹🇸🇳🇬🇼 Patient Exp Library Aimee Robson (she/her)

Doctors and biologists working together to improve patient outcomes
#AdFeature with The ICR Breast Cancer Now

Thanks to ME/CFS Quotes for boosting this message about the importance of #PatientPartnership in research. 💙

We did it! We had a great podcast conversation. Thanks Julie Drury Nadia Hillier Mathieu Jackson and most especially thanks Patient Critical Co-op for bringing us together! Stay tuned for the recording. #PatientPartnership #PatientEngagement #Disruption Jennifer Johannesen

Thank you Isabel Jordan (She/Her) and Dr. Christine Chambers for sharing perspectives on what we can DO to meaningfully engage in #PatientPartnership ! We’ve learned a lot and have so much room to grow our practices #MindingPain2022

Key message: Bring the voice of lived experience to the forefront. #patientpartnership #languagematters #ultraday2022 Isabel Jordan (She/Her) Dr. Katie Birnie ENRICH CCHCSP Diabetes Action Can. Canadian Islet Research and Training Network Diabetes Canada MICYRN

Our webinar on #VirtualWards will be on Patients Association website soon!
#NHS #PatientPartnership #PatientSafety

So excited and grateful to receive a #MSI Foundation grant (msifoundation.ca) to #Codesign trauma-informed care for children with medical complexity and their families! Thanks to my amazing collaborators! Isabel Jordan (She/Her) Rachel Martens (she/her) Kristina McGuire Dr. Katie Birnie (1/2)

Patients Association Aimee Robson (she/her) Sam Finnikin Sally Peterson Thanks to all 👏👏👏👏
… that was a really packed breakfast agenda & so many good approaches to #PatientPartnership
❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿 accessible approach to getting public/ patient feedback on design … literally just go out into street & ask people 👍

#RareDisease patients share their advice for navigating relationships and finding community.

#Sponsored by IpsenUS bit.ly/3LdEvIJ

Inspiring kick-off to Quality Forum BMJ Institute for Healthcare Improvement (IHI) #Quality2023 #Copenhagen #patientsafety #healthcare #patientpartnership Kamran Abbasi Gerard MSc SCP (Tr & Orth) NMP RN MFPCEd 💙 Jennifer Burrows

#Patientpartnership and #patientengagement folks of twitter! What are/who has great models/ examples for successful patient integration into governance levels? Feeling v.optimistic over here. Julie Drury sue robins (she/her) Heather Sutcliffe @helenbevan Hélène Campbell 🇨🇦 Leslee Thompson

One week on, wanted to share reflections on being a partner in my own healthcare. 💙 #PatientPartnership

Amazing 2 days learning and engaging in #EQPubSchool which included patient partners and researchers!
So grateful to have attended, thankful to the presenters, speakers, and fellow collaborators!
#AcademicPublishing
#PatientPartnership
#OpenScience
Not about us, without us!

Try thinking ‘how must this feel for the community with an existing condition’ rather than ‘but they had a medical condition’. You might be surprised by the insight you gain.

#patientpartnership #patientperspectives

11/11

Join our #MakingADifference webinar to hear from carers and people living with #Dementia about how they've shaped and influenced health and care services.

📅31 May 1-2.30pm

Register👉forms.office.com/e/TPSy2xFKsx

#PersonalisedCare Tim Kendall Claire Murdoch Patients Association Carers Trust

Great conversations at WYRPS between people (patients and pharmacists). Let's work together to understand what's important for each of our patients and support them to find what they need. Better Conversations Graham Prestwich Dr Justine Tomlinson Angela Burgin 💙 LTHPharmacyServices #patientpartnership

I’m so thrilled to be a part of this work. #PatientPartnership

May 12th is #InternationalMEAwarenessDay .

Want to learn more about what’s new in ME research? Save the date for these webinars from MEFM Society of BC. mefm.bc.ca/webinars

We're working with Royal College of Physicians & NHS England on the development of a strategy for outpatients.
Last week, we shared with clinicians & patients how important #PatientPartnership is and patients' experiences of using #outpatient services.

Interesting discussion on a virtual wards. This is some of the work we have done with our Frailty virtual wards for patients who live in care homes england.nhs.uk/long-read/case…

#noplacelikehome #aspirationalnurseleader #Communitynursing
Hospital at Home (Cheshire West) Dr Crystal Oldman CBE EdD RN RHV QN FRCN
Ann Keen RN NDN FQNI FAAN FRCN

.Sabrina Poirier (On Hiatus) is a member of the #MECFS Community Advisory Committee, assembled by Center for Solutions for ME/CFS. She recently addressed researchers across the NIH Collaborative Research Centers, urging them to partner with patients. cfsformecfs.org/2021/12/01/com… Kathi Kuehnel Center for Infection & Immunity ColumbiaPublicHealth