#DailySketch #SketchDaily #Day129
instagram.com/p/Bg4rcJtnNSS/
youtube.com/user/bengjie
facebook.com/bengjie
#artist #bengjie #benperez
#MuscularDystrophy #CentroNuclearMyopathy #artist onyoutube #artist oninstagram #artist onfacebook #artist ontwitter
#painting done for the day. Fucking tired. Should put the #CPAP on for a little. Time to #rest #MuscularDystrophy #CentroNuclearMyopathy #bed
Sunflowers growing in Seymour Australia in memory of George.
#TheBigSunflowerProject #Sunflower #Sunflower s #GrowASunflower #SowGrowShow #LetItGrow #Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies
#RareDisease #RareDisease
Sunflowers growing in Methuen, Massachusetts during The Big Sunflower Project 2022.
#TheBigSunflowerProject #Sunflowers #GrowASunflower #Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #NeuromuscularDisease #RareDisease #RareDisease s
Mein #Geburtstagswunsch : Spenden ZNM - Zusammen Stark My #birthdaywish donations for #zusammenstark #togetherstrong #centronuclearmyopathy #myotubuläreMyopathie #myotubularMyopathy facebook.com/donate/3579334…
Happy World Rare Disease Day! Raise awareness and #showyourRARE ! Today I'm #blueforthecure #blueforReidandPaley #myotubularmyopathy #centronuclearmyopathy
Please help us, that little Wilson with #CentronuclearMyopathy can be at home with his family. in #Ecuador . ZNM - Zusammen Stark is fundraising and informing here: znm-zusammenstark.org/en/myopathie/p…
#SiSePuede #JuntosSomosfuertes #RareDisease
Urgent appeal to locate van stolen from terminally ill boy:
news.met.police.uk/news/urgent-ap…
#Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #RareDisease #RareDisease s
Mother of terminally ill son pleads for return of stolen modified van: news.sky.com/story/mother-o…
#Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #RareDisease #RareDisease s
I am working for a #raregeneticdisorder called #centronuclearmyopathy with other amazing people #phdlife ! Show your rare show you care #rarediseaseday2019 #igbmc @ Igbmc (Institut de… instagram.com/p/Bub2JiJHQFd/…
Could you help fundraise for research into centronuclear and myotubular myopathy this Christmas? Pop over to the project Facebook page at facebook.com/groups/4060616… to learn how. 🎅 🎄 🌟
#CentronuclearMyopathy #MyotubularMyopathy #RareDiseases #Fundraising #MakeYourMoneyMagical
Mother of terminally ill boy, 13, makes plea after ‘lifeline’ van stolen: independent.co.uk/news/uk/mother…
#Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy #Centronuclear Myopathies #RareDisease #RareDisease s
#nmcbadgegetsabout checking on our TheInformationPoint #Sunflowers getting their first drink of #rain for ages!
#CentronuclearMyopathy #MyotubularMyopathy #musculardystrophy #cheshire #NotJustABusiness
Sunflower grown in Melbourne, Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclear myopathy #myotubular #myotubular myopathy #sunflower #sunflower s #growasunflower
Sunflowers grown in Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclear myopathy #myotubular #myotubular myopathy #sunflower #sunflower s #growasunflower
West Sussex annual 16th Jack Blunsdon Memorial Trophy Golf Day raises record total for The Myotubular Trust:
sussexexpress.co.uk/sport/golf/wes…
#Centronuclear #Centronuclear Myopathy #Myotubular #Myotubular Myopathy
It’s finally happened! Our #sunflower is in #bloom and we are thrilled.
We are loving being involved in the #BigSunfloweProject TheInformationPoint
#centronuclearmyopathy #myotubularmyopath #musculardystrophy
#Asomatognosia is a #neurological #disorder characterized as #loss of #recognition or #awareness of part of the #body .
Register & Book your slot: globalepisteme.org/Conference/neu…
#Causalgia #Centralpainsyndrome #Centralpontinemyelinolysis #Centronuclearmyopathy #Cephalicdisorder #sleep
From today you can win a £100 gift card each day until Christmas with the @easy advent calendar. Plus, you will also get an entry into the Christmas day prize draw to win a £5,000 donation for Myotubular Trust.
#CentronuclearMyopathy #MyotublarMyopathy #RareDiseases #Fundraising
