📢Ya estamos a 20 días de conmemorar el Día Mundial y Nacional de las Enfermedades Raras dónde la prioridad son siempre los pacientes, por ello el visibilizar y alzar la voz es tarea diaria.
#conmemorandoytrabajando #rarediseaseday2023 #rarediseasday #cebrasmexico #ShowYourRare
💜💙💚On Rare Disease Day, we recognise the unity of those facing rare diseases.
🦓Individually we are rare, collectively we are many.
💪Join us in standing as a global community, committed to making a difference.
#RareDiseaseDay #ShowYourRare #Hope #FOPFriends #ShowYourStripes
As PBC is a Rare Disease we would like to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. More here: ow.ly/zORj50DKIVd #ShowYourRare #RareDiseaseDay
Παγκόσμια Ημέρα Σπάνιων Νοσημάτων και στο Karaiskakio διενεργούνται πρωτοποριακές έρευνες για τη μελέτη και εξεύρεση νέων θεραπευτικών προσεγγίσεων για την αντιμετώπιση σπάνιων νοσημάτων.
#showyourrare #showyoycare #RareDiseaseDay2021
'Empathy knows no boundaries. On #RareDiseaseDay , let's raise awareness, support, and hope for those facing uncommon health challenges. Together, we can make a difference. 💙 #ShowYourRare '
On #RareDiseaseDay let's remember all patients families clinicians researchers of #rarediseases . Also big shout-out to my team, funders, collaborators in support of our research on rare metabolic disorders. Together, let's make a difference. #ShowYourRare #RareDiseaseDay 2021
#29febbraio2020 è la #GiornatadelleMalattieRare
#rRareDiseaseDay2020
#RDD2020 #ShowYourRare #ShowYourSupport
Istituto Superiore di Sanità Ministero della Salute IRDiRC EJP RD - European Joint Programme on Rare Diseases uniamomalattierare Rare Disease Day Telefono Verde Malattie Rare Claudio Carta Eva Bermejo-Sánchez, PhD Manuel Posada EU One Health
We celebrated #RareDiseaseDay by raising the Rare Disease Day flag at city hall this morning with folks from the rare disease community! #ShowYourRare #EndTheDiagnosticOdyssey City of Ottawa
Σήμερα είναι η #RareDiseaseDay2022 , μια μέρα αφιερωμένη στην αφύπνιση/ προώθηση αλλαγών για τους ανθρώπους που ζουν με σπάνιες παθήσεις, τις οικογένειες και τους φροντιστές τους....
...μια από αυτές και η Θαλασσαιμία.
#ShowYourRare #RareIsStrong
GISTs are rare with 4,000 - 6,000 new patients diagnosed annually in the US, but they are the most common sarcoma of the gastrointestinal tract.
#rarediseases #ShowYourStripes #ShowYourRare
It's Rare disease Day!
“What makes me proud is that I’m only one in 10,000 people living in the UK with this rare illness.”
Listen to Lara’s message this Rare Disease Day!
Rare Disease Day
#RareDiseaseDay #ShowYourRare #Ataxia #Ataxia UK #Ataxia Awareness
Happy Rare Disease Day to all our followers who suffer from one or more. Today is your day to spread awareness! 💚 What rare disease do you or a loved one suffer from?
#ChronicLoveClub #RareDiseaseDay #ShowYourStripes #CareforRare #ShowYourRare
Today is #RareDiseaseDay
#Neurofibromatosis Type 1 (NF1) is rare! This is Kicky!
Kicky is 7 years old and as well as having NF1 Kicky also has many more rare conditions too as you can see from his poster. Kicky is also registered blind due to Glaucoma.
#ShowYourRare #EndNF
Help raise awareness and bring visibility to those living with rare diseases 🎗Rare Disease Day
Resources for rare diseases: bit.ly/3y03IAi
#RareDiseaseDay #ShareYourColours #ShowYourRare #advocate #solidarity
Today is #RareDiseaseDay .
ADHS is proud to stand with families navigating the uncommon journey of rare diseases. Join us as we support and advocate for all those facing rare diseases. 💙👶
#ShowYourRare #NewbornScreening #RareDiseaseAwareness
1/ On #RareDiseaseDay , the Yue Lab at Newcastle at NCL_RareDisease would like to thank all patients, clinicians, funders & collaborators for inspiring, motivating and guide us in our work on #rarediseases ! #ShowYourRare Rare Disease Day
