Good morning from Miami. Boarding my flight home. Meanwhile, Michael A. Taylor won a World Series in Washington and heads back there for the first time this week. The Pirates’ new center fielder fascinates me. Really interesting guy: post-gazette.com/sports/jason-m…

Rob Long's story is remarkable. He has survived for 13 years following a diagnosis of a severe type of brain cancer, all thanks repurposed drug.

Yet it took over a decade for it to be officially recognized and included in the treatment protocols for his specific cancer.

This

Just a kid from Downingtown, PA.

Will Howard

Thank you for all you do to bring about rare disease awareness, rare disease research, and uplifting so many individuals impacted by rare diseases!

Uplifting Athletes
A perfect night for baseball ⚾
Seattle Mariners Minnesota Twins
#RareDisease #WeTackleRare

Headed to see the Seattle Mariners smoke the Minnesota Twins with our friends from Uplifting Athletes 🙏
Thanks Rob Long team!
#RareDisease #CTNNB1

Incredible speech, Jordan Pierre 🙌🏾 Keep going 🫡

The 10,000 Mile Challenge is back! Uplifting Athletes Executive Director Rob Long (@roblong47) has pledged to run 30 miles between August 10-19 in support of the rare disease community. Sign-up as an individual or team today: bit.ly/3Na0vXf

#10kRareMiles

With that home run in the 5th, Michael A. Taylor makes another donation to Uplifting Athletes to help support rare diseases.

Learn more and join the pledge! pledgeit.org/michael-a-tayl…

Punter Nolan Cooney, who battled and overcame cancer when he was in high school, paid a visit to Phoenix Children's Hospital yesterday to provide some smiles 😄

azcardinals.com/news/cancer-vi…

Our next panel of experts discuss incentivizing #raredisease research and development!

#RareDiseaseDay #parare

Today is #RareDiseaseDay ! I shared some of my rare journey with the incredible Dr. Moyez Jiwa. I hope you’ll check it out! #WeTackleRare

Stuart Siedman, Global Head of Patient Advocacy, Rare Diseases, joined Rob Long, Randy Allen and Sarah Thomas in a panel discussion to share their personal stories with the student athletes in attendance, putting an important spotlight on the impact of rare diseases.

Rob Long has done an incredible job growing this organization! #castlemanflex #warriorflex

Loved being able to participate in the Uplifting Athletes #younginvestigator draft last night and celebrate CDCN researcher Melanie Mumau!

Great work, Rob Long!

upliftingathletes.org/young-investig… #wetacklerare

Thank you Uplifting Athletes Rob Long Philadelphia Eagles LincolnFinancialFld for shining a light on rare disease research! Congratulations CDCN David Fajgenbaum, MD on your fantastic choice in drafting Melanie Mumau! Such an inspirational evening!

Had the pleasure of joining FOX 29 yesterday to promote the Uplifting Athletes Young Investigator Draft on February 4th! I hope you can join us! #WeTackleRare fox29.com/video/1172823

Year 5✅

Appreciate the highs & lows that come with the game! Bigger and better next year in every way. Believe that ‼️ #ForTheShoe #ColtsNation

Happy Birthday to Brett Brackett and Rob Long two of the best! Privileged to call you both friends!

With a 7-6 PK win over No. 13 Indiana, Syracuse men's soccer wins the College Cup for the first time in program history.