Get involved in #RareDisease advocacy in YOUR town!
Join our webinar on Thursday, April 25 at 7pm ET to learn how to volunteer with NORD. One panelist, Abby, will share how she got her town to #LightUpForRare on #RareDisease Day!
RSVP now: bit.ly/3UeXurT
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/4ayNgbV bit.ly/4b0XXn5
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/47NzgJ9 bit.ly/3xIMSZS
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/47NzgJ9 bit.ly/4cYr4JK
To mark #RareDiseaseDay 2024, Alexion and OrphanDev Network have published the second edition of their Rare Disease “Crossed views” report, entitled “Rare Diseases: When Women Advocate.”
bit.ly/WhenWomenAdvoc…
It’s so wonderful seeing what an impact our Rare Moments page had on the rare disease communities this year! Check out our blog to hear some key highlights from #RareDiseaseDay 2024! bit.ly/47NzgJ9 bit.ly/4d3RcCU
It’s so wonderful seeing what an impact our Rare Moments page had on the rare disease communities this year! Check out our blog to hear some key highlights from #RareDiseaseDay 2024! bit.ly/47NzgJ9 bit.ly/3vJH1mt
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/47NzgJ9 bit.ly/3Jia97g
Denise DAscenzo Foundations Walk to Fight Rare Diseases set for April 27 #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight [Video] The annual Denise DAscenzo Foundations Walk to Fight Rare Diseases was scheduled for Saturday, April 27, ... dlvr.it/T5Xw5S
Denise DAscenzo Foundations Walk to Fight Rare Diseases set for April 27 #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight [Video] The annual Denise DAscenzo Foundations Walk to Fight Rare Diseases was scheduled for Saturday, April 27, ... dlvr.it/T5Xw3z
The girl who cant smile: How a rare disorder became a young woman’s greatest gift #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight [Video] Tayla Clement, 26, was born with a rare disorder that made it impossible to smile but she says she… dlvr.it/T5bKBL
I have a bunch of new followers so I thought I'd introduce myself! I'm Averly. I'm 19. I love theatre, music, writing, raising awareness for #RareDiseaseDay
Been a Swiftie since I was a toddler, forever grateful for her music getting me through my darkest days ❤️
FRIDAY NIGHT FRENZY PREVIEW: Game of the Week #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] Marc Robbins gave a preview of the game of the week and UConn ... dlvr.it/T5hH0S
FRIDAY NIGHT FRENZY PREVIEW: Game of the Week #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] Marc Robbins gave a preview of the game of the week and UConn ... dlvr.it/T5hH7k
Rare Disease Day Good luck. @Geneyx loves you artwork and what you stand for. #rarediseases
Prefer learning on-the-go? Our #SpeakerSeries #webinar s , including our #RareDisease Day #webinar 'Equitable Access to #RareDisease Care' with Claudia Gonzaga-Jauregui & Kira Dineen, MS, LCGC, CG(ASCP)CM, are available to stream as #podcasts .
Spotify: open.spotify.com/episode/3MxuIY…
Apple Podcasts: podcasts.apple.com/ca/podcast/dr-…
We are looking to partner with a creative agency to develop and produce our visual materials for the 2025-2028 #RareDiseaseDay campaigns.
The deadline for submitting tenders is Friday 3 May 2024.
👉 download2.rarediseaseday.org/2025/Rare-Dise…
'people might not think that you’re able to do something and they might exclude you from their plans. It would be better for people not to assume and ask anyway.'
🔗Tap the link for more.
#RareDiseaseDay #MDIRareConditionAwareness
mdi.ie/all-news-artic…
El 17 de abril se conmemora el Día Mundial de la Hemofilia y desde la @fundacionlihea nos invitan a las actividades que tienen programadas para este día.
#enfermedadeshuerfanas
#enfermedadesraras
#FECOERSomosTodos
#rarediseaseday
#mesaerantioquia
#hemofilia