Lesson 5 of our collaboration with Medics4RareDiseases is now out - sign up now for free at learn.m4rd.org. #MentalHealth #RareDisease #RareMindsMatterhttps://twitter.com/M4RareDiseases/status/1689598992517050368?s=20

So pleased to be working with Timothy Syndrome Alliance (TSA) on supporting the #CACNA1C community. #RareDisease #RareMindsMatter #MentalHealth

Do you want to be part of the official #RareDiseaseDay 2024 video? 📽️

Now is your chance!

To send in your contributions or get more information on how you can get involved, DM us or contact us at [email protected]!

#LightUpForRare #ShareYourColours #video

RECAP! ✋Available lessons!!

🧠 Lesson 1: Introduction to Mental Health and Rare Disease
👩‍⚕️ Lesson 2: The Rare Disease Journey
🧬 Lesson 3: Mental Health and Inherited Genetic Conditions
🔍 Lesson 4: Assessing Mental Wellbeing

Begin now!
Rareminds
learn.m4rd.org

Listen to our CEO & Founder KymPitts discussing the impact of rare diseases on mental health & wellbeing at the recent @EURORDIS webinar (27 mins in). #raredisease #mentalhealth #raremindsmatter
youtube.com/watch?v=9rUvHG…

Our service in collaboration with Rareminds offers study sponsors the opportunity to provide counselling to patients. For more information, contact our team. View our full research poster here buff.ly/3Z2HSb7 #clinicaltrials #research #counselling #rareminds

We're so excited to be working with Rare Disease Research Partners on this project to pilot provide specialist counselling to #RareDisease clinical trial participants!
#MentalHealth #RareMindsMatter #ClinicalTrials

Managing the complex emotions & family dynamics associated with inherited #genetic conditions can be difficult and adversely affect mental health.
Explore these risks & how to support in lesson 3 of ' #MentalHealth & #RareDisease .
x.com/m4rarediseases…

Lesson 2 of our partnership with Medics4RareDiseases is now out. Sign up for your free account to find out more about how the #raredisease journey can impact mental wellbeing - pls share.
#MentalHealth #RareMindsMatter
x.com/m4rarediseases…

We're so excited to be working with Rare Disease Research Partners on this project to pilot provide specialist counselling to #RareDisease clinical trial participants!
#MentalHealth #RareMindsMatter #ClinicalTrials

Our CEO Kym Winter is currently talking at the EURORDIS-Rare Diseases Europe workshop about the work of @Rareminds, and how #mentalhealth is the missing puzzle piece for #raredisease care. #RareMindsMatter

Too often #MentalHealth is treated as secondary to physical health. In #RareDisease however there are often complex interacting emotional & physical symptoms - both need to be addressed & supported. #RareMindsMatter x.com/samhsagov/stat…

#MentalHealth support must become a standard part of #RareDisease care. Final chance to register for the EURORDIS-Rare Diseases Europe webinar exploring this issue featuring our CEO Kym Winter. #RareMindsMatter

#MeetTheTeam ! David is our counsellor working with
AMEND & ChildhoodTumourTrust. He's also a qualified clinical supervisor & takes a lead role in overseeing our background clinical processes & procedures.
#RareMindsMatter #MentalHealth #RareDisease

Effectively supporting the #MentalHealth & #Wellbeing of #RareDisease patients requires appreciation of their lived experience & the complex challenges they face in relation to their particular condition. New online course by @m4rd & Rareminds dropping weekly - pls share.

This is a fantastic resource! Thank you Rareminds and Medics4RareDiseases for creating this course, it's wonderful! Cerebra Network for Neurodevelopmental Disorders Patrick Wild Centre RDI EURORDIS-Rare Diseases Europe

Such a privilege to work with the Medics4RareDiseases team on these resources. Health care professionals play a key role in supporting the #MentalWellbeing of people impacted by #RareDiseases . #MentalHealth support must become a standard part of rare disease care. #RareMindsMatter

So excited for this launch today - keep your eyes peeled for the first module coming later today! #RareMindsMatter #MentalHealth #RareDiseases

'..I get very embarrassed in social environments having to apply my treatments. As applying creams is not seen as a manly thing by society.'
Having a #RareDisease can impact all areas of life, especially self esteem. #MensHealthMonth #MensMentalHealthMonth #MentalHealth