Today is #raredisease day I have #mastocytosis #systemicmastocytosis the subtext of this tweet is better served by my IG today bit.ly/2Uwx8Q1 #showyourrare #raredisease #chronicillness #raredisease day #spoonie #invisibleillness #poetry community #poetry #writingcommunity
Bone marrow aspirate smear of systemic mastocytosis (20% count) #mastcells #systemicmastocytosis #SM
Remember that approx 40% of #SystemicMastocytosis has an associated hematologic malignancy. In Dr. Fend's experience it is often #CMML #hemepath #SEAP2019G
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#spoonie #togetherwedazzle #riseup #adapt #ableism #fragilebutunbreakable #primaryimmunodeficiency #raredisease #zebrastrong #anaphylaxis #systemicmastocytosis #gastroparesis #Dysautonomia … instagram.com/p/B6uC_6FgT74/…
Happy New Year!!! 🙏🏼❤️ May 2023 be a year full of medical breakthroughs! #findacure #HappyNewYear #systemicmastocytosis
Do you have Systemic Mastocytosis? A rare blood cancer? If so, please contact us at Heal Canada! we want to hear from you! [email protected]
#systemicmastocytosis #mpnsm #bloodcancer #patientadvocacy
Yeah, we dig each other.
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#spoonie #togetherwedazzle #riseup #adapt #ableism #fragilebutunbreakable #primaryimmunodeficiency #raredisease #zebrastrong #anaphylaxis #systemicmastocytosis #gastroparesis … instagram.com/p/B6oMwqJgLhU/…
💥🎊 New #EPICOVIDEHA publication
Brief report of 20 cases reported in our registry with #SystemicMastocytosis
- SM or its tx NOT strong impact on #COVID19 clinical course
- Vaccination safe, w/o associated AE
- 5% mortality: alloHSCT might be risk
OA 👉jiaci.org/revistas/doi10…
A #24HourUrine #Histamine Test might require two jugs if you have #AddisonsDisease , #PosturalOrthostaticTachychardiaSyndrome , or #EhlersDanlosSyndrome .🥴😳
#Immunology #MastCellDisorder #MastCellDisease #MCAS #MastCellActivation #SystemicMastocytosis
💔gofundme.com/HOPE-for-a-Rar…
Are you a Systemic Mastocytosis Patient? If so, email us at [email protected]
#healcanada #systemicmastocytosis
Join us Saturday morning at #SkiMtHolly for a YOGA ON THE MOUNT class! Participants will have the opportunity to hike the beautiful hill for a one of a kind #Yoga experience at the top.
#SystemicMastocytosis #Community #CharityEvent #MichiganYoga
facebook.com/events/s/yoga-…
March Madness just got a whole lot cuter with our very own 🌲cheering on Stanford women’s basketball! 🏀👧🌲 Let’s go, Cardinal! #GoStanford
#MarchMadness #StanfordWBB #lennonswarriors #gostanford #findacure #standfordtree #rsvlts #santabarbara #systemicmastocytosis #NCAAWBB
Lennon has taken 4 AM meds most of her life. We have enjoyed many sunrises together. This is the life we were blessed with, & we're going to make the best of it. It doesn't mean that it doesn't hit us that
her life is different in many ways.
#systemicmastocytosis
#lennonswarriors
UK #SystemicMastocytosis patients, please participate in this exciting survey on living with all forms of SM, the burden it causes, & our unmet needs.
prismsmeurope.com. Designed with patient groups & mastocytosis doctors, sponsored by @BlueprintMedicines. #qualityoflife
Free webinar on May 8th by #SystemicMastocytosis Ambassador, Sarah! Register today. #mastocytosis #mastcelldisease #RareDisease cloud.outreach.blueprintmedicines.com/webinar?utm_so…
UK doctors with even 1 #systemicmastocytosis patient! PRISM is the 1st survey on QoL of SM patients in Europe. HCP survey asks abt tx and unmet needs. Patient survey abt QoL. Please complete & share.
#advancedSM #indolentSM #QoL #realworlddata Dr Deepti Radia Blueprint Medicines
We might not know what the future holds for our beautiful daughter but we do what is in our power to make Lennon comfortable while creating special, memorable moments. #SystemicMastocytosis #HappyNewYear2023
Thank you so much to everyone that has supported us during 2022 🙏🏼❤️