‼️Systemic Racism
‼️Research Funding

Allocation of research funding in UK is entrenched in #SystemicRacism .

All 3 funders favoured #CysticFibrosis from 2010-24, by awarding £67 & £74 million more than #SickleCellDisease & #Haemophilia respectively.

blogs.imperial.ac.uk/uk-sickle/

spleenish haemophilia state poutingly 창녀촌 #아이스 impassible Anglo-American shoehorns undistractedly

'She never got over what happened to Euan'

Euan McDougall was just 16 when he died from Aids in 1994 after being infected with HIV by blood products used to treat haemophilia bbc.in/3UwdBQU

The Brian O'Mahony Award for Outstanding Contribution to Haemophilia Care in Ireland was awarded last night to Professor James O'Donnell.

Prof. O'Donnell has worked as a consultant haematologist in the NCC since 2005 and is a world renowned researcher and authority on VWD.

Lighting it up red at Chugai! Proudly wearing red for World Haemophilia Day to unite behind ‘equitable access for all’ and reinforce our commitment to the haemophilia community. #WorldHaemophiliaDay #LightItUpRed #WHD2024

C-GB-00001328 | May 2024

Infected Blood Scandal - Ms Woodridge remembers coming home from school and finding her 'Mum was just sat on the floor crying'.

bbc.co.uk/news/uk-englan…

#ContaminatedBlood bbc.co.uk/news/uk-englan…

I have found a new minority to hate: Haemophilia patients.

Lodu sab medicine emergency refer ho jaate hai fir chillate rehte hai bheed me ki sir factor laga do sir factor laga do. Most entitled SOBs.

Why I fought #Australia ’s greatest medical injustice…

Listen to my #podcast When Humanitarians Kill to find out.

Listen to #podcast here podcasts.apple.com/au/podcast/whe…

Please #help me by donating to my #GoFundMe here gofund.me/77abc074

#Health #Haemophilia #blood #law

Treloar's College was 'using the boys as guinea pigs' to treat haemophilia bbc.in/3JKn0iZ

‘I lived my whole life fearing I might bleed to death’: The trials and tribulations of living with Hemophilia

On average, a Person with Haemophilia A (PwHA) experiences 30-35 bleeds a year. Each bleed is said to reduce 15 days of life for a PwH with possible complications lea…

Jonathan Evans died after being infected with HIV and Hepatitis C from contaminated blood products used to treat his haemophilia.

His son Jason Evans is campaigning for justice, after uncovering documents which seem to show many victims were unknowingly used in medical trials.

High levels of #anti -FVIII IgG4 and IgG total are associated with #immune tolerance induction failure in people with congenital haemophilia A and high-responding inhibitors rpthjournal.org/article/S2475-…

Discover the heartbreaking story of Kate McDougall, who unknowingly infected her son with HIV while treating his haemophilia. A poignant reminder of the impact of medical negligence. Read more at ift.tt/xmC4F18

Such great feedback from #HPCC2024 attendees on importance of #physicalactivity and how to overcome barriers when living with a #haematology condition.

Professional double act with Paul McLaughlin, drawing on experience supporting people with #myeloma and #haemophilia

When I started my nursing career 36 yrs ago did I ever imagine that I would have achieved all that I have. So when The #JHP asked me to write about the impact of research in Haemophilia care, it struck me as a great chance to look back as well as forward. sciendo.com/article/10.247…

Discover the heart-wrenching story of Kate McDougall, who unknowingly infected her son with HIV while treating his haemophilia. Read the full story here: ift.tt/xmC4F18

Discover the heartbreaking story of Kate McDougall, who unknowingly infected her son with HIV while treating his haemophilia. Learn more about this tragic journey here: ift.tt/xmC4F18

Mrs Megan Adediran, Our President and CEO Haemophilia foundation of Nigeria and WFH PACT Program, A Woman of great honor and power, A Mentor, Mother and Grandma. Took the second presentation on the Role of HFN in bleeding disorders care in Nigeria at the workshop.
#haemophilia

Assessing joint health in haemophilia patients: The combined value of physical examination and ultrasound imaging

Sara Arcudi AlessandroCiavarella Addolorata Truma flora peyvandi

Policlinico di Milano Università degli Studi di Milano

onlinelibrary.wiley.com/doi/10.1111/ha…

Do look at this series - the stories of how patients impact on nurses (and how that interaction changes how we worth with other patients) is truly amazing. #haemophilia