Here is recap of all we talked about in this thread.
#sicklecelldisease #sicklecellwarrior
#scmentorship #sicklecellmentorship
Lots of gifts won as promised🤗
Special thanks to Infinix Nigeria Kano and itel for making this possible for us🙌
#aaronsicklecellcarefoundation #SickleCellFoundationNigeria #SickleCellAwareness #SickleCellDisease #sicklecellwarrior #sicklecellanemia #sicklecellawarenes
As columnist Dunstan Nicol-Wilson reflects on another year around the sun after his birthday, he's aware of his physical and mental health. buff.ly/3yiefKu #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
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#sicklecelldisease #sicklecellwarrior #sicklecellawareness #sicklecellstrong #scmentorship #sicklecellmentorship
Discover the latest in cell-based genetic therapy for inducing fetal hemoglobin in Sickle Cell Disease and transfusion-dependent β-thalassemia!
Register now to stay informed: touchoncology.com/your-free-10-m…
#GeneticTherapy #SickleCellDisease #Thalassemia
दर्द से जूझते हुए प्रण से अपने लिखे शोध पत्र के पुरस्कार तक
अधिक जानकारी के लिए आज ही 'माई सिकल केयर मोबाइल एप' डाउनलोड करें rb.gy/8qc3iq
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#sicklecell disease #sicklecell #sicklecell patients #sicklecell warrior #mysicklecareapp #appforsicklecelldiseasemanagement
📢 Dive into a powerful narrative shedding light on Sickle Cell and the insidious grip of discrimination. Let's spark a conversation that matters. Read it now on my blog! 👉🏾 bit.ly/4dKIiuH
highlight #sicklecell disease #sicklecell #sicklecell warrior
‼️Systemic Racism
‼️Research Funding
Allocation of research funding in UK is entrenched in #SystemicRacism .
All 3 funders favoured #CysticFibrosis from 2010-24, by awarding £67 & £74 million more than #SickleCellDisease & #Haemophilia respectively.
blogs.imperial.ac.uk/uk-sickle/
We had a great afternoon yesterday.
Focusing on 1. Health, 2. Family, 3. Education, and 4. Community! We foster “for” giving hearts and responsible citizenship. #FGH #fourgivinghearts #sicklecelldisease #sicklecelltrait #sicklecellwarriors
And Our Building a Warriors Mindset Program was a Success✨🥳🎉
#aaronsicklecellcarefoundation #SickleCellFoundationNigeria #SickleCellAwareness #sicklecell warrior #SickleCellDisease #sicklecell #SICKLECELLANEMIA #sicklecell awareness #teamsicklecell
New Medication for Sickle Cell Treatment, New Hope: Voxelotor.
Thank you for the hardwork @pfizeruk Pfizer UK
Click here for more info: news.sky.com/story/life-cha…
#sicklecelldisease
bluebird bio has completed the first commercial cell collection for its one-time gene therapy, Lyfgenia, designed for treating sickle cell disease.
#BluebirdBio #BLUEStock #BluebirdBio Stock #Lyfgenia #SickleCellDisease #Casgevy #GeneEditing #GeneEditing Therapy
$BLUE
A gentle reminder! #SickleCellDisease no be your mate o! Watch this short clip! Full #KunleOlofofo Series - 'E choke o' on YouTube at youtu.be/MNbXDCATmIk. Keep following #DokiOniFere aka #SaxyDrSam . @aprokodoctor AltSchool Africa The Nigerian Doctor
Learn everything you need to know about blood transfusions for Sickle Cell Disease in this complete resource: buff.ly/4drEdez
#BloodTransfusions #SickleCell #SickleCell Anemia #SickleCell Disease #SickleCell Education
Extending Gene Medicines to All in Need
That’s the big challenge ! #SickleCellDisease #Thalassemia
3.6 million born every year with these two disorders mostly in Africa and Asia
How to make people afford gene therapy costing $2.2-2.8 million? nejm.org/doi/full/10.10…
David Altshuler from Vertex Pharmaceuticals discussed the transformative impact of #CRISPR gene-editing technology, highlighting its role in providing #SickleCellDisease patients with significant pain relief.
#AnnualGenomicsForum2024
Last stretch Nairobi County! Talking about putting #SickleCellDisease & #NCDs on the decision making table. I look forward to witnessing revatilized #Advocacy for #NCDs across #Kenya . Novartis AMPATH Kenya NCD Alliance Kenya NCDI Poverty Network Kenya Hospices and Palliative Care Association Bazenga 😎 Joy Ogingo
How can we improve outcomes in #sicklecelldisease in #sicklecellcenters through decreasing institutional racism. National Alliance of Sickle Cell Centers ASH
Exciting day it was at the sucessful shoot of our #FundraiserCampaign launch with KASUKU Together we are making a difference for #100kFor100children battling with #SickleCellDisease
join us in spreading hope and support
#SickleCellWarriors Uganda Sickle Cell Rescue Foundation
