CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

People don't realize how exhausting it is to fight for your health every single day when you're in chronic pain. As you start this new week, remember that you are a warrior! πŸ’ͺ

Warrior

People don't realize how exhausting it is to fight for your health every single day when you're in chronic pain. As you start this new week, remember that you are a warrior! πŸ’ͺ

#CES #CEF #CESWarrior #CaudaEquinaSyndrome #CaudaEquinaFoundation #ChronicPain
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

πŸ¦“ Today is Rare Disease Day! πŸ¦“ Let's all share the day we joined the CES and rare disease community. When was your diagnosis and/or surgery?

2021 Warrior

πŸ¦“ Today is Rare Disease Day! πŸ¦“ Let's all share the day we joined the CES and rare disease community. When was your diagnosis and/or surgery? 

#RareDiseaseDay #RareDiseaseDay2021 #CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

Ask the Expert Thursday at 6:30 PM EST followed by support group sessions with your fellow CES Warriors.
Get your tickets at Eventbrite, follow the link below.
Thank you to our donors for making this possible! πŸ’œ
Hope to see you there!

Ask the Expert Thursday at 6:30 PM EST followed by support group sessions with your fellow CES Warriors.
Get your tickets at Eventbrite, follow the link below. 
Thank you to our donors for making this possible! πŸ’œ
Hope to see you there!

#CESuppot #CESExpert #CESLife #CESWarrior
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

Do you have a system in place? A sign on the fridge? A specific emoji you text? Let's hear how you make off days work in your family!

Warrior

Do you have a system in place? A sign on the fridge? A specific emoji you text? Let's hear how you make off days work in your family! 

#CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

What is the best advice you have for parents who are new to CES? What about for those with CES who may be thinking of having or planning to have children in the future?

Warrior

What is the best advice you have for parents who are new to CES? What about for those with CES who may be thinking of having or planning to have children in the future? 

#CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

Have you found a way to explain your CES diagnosis or new physical limitations to the kids in your life? πŸ‘Ά What have you found is the best way to describe it in words they understand? πŸ‘§

Warrior

Have you found a way to explain your CES diagnosis or new physical limitations to the kids in your life? πŸ‘Ά What have you found is the best way to describe it in words they understand? πŸ‘§

#CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

As we head into Rare Disease Day 2021, let's talk about how you ended up in this community. Do you remember what your first warning sign was? What about your first red flag?

2021 Warrior

As we head into Rare Disease Day 2021, let's talk about how you ended up in this community. Do you remember what your first warning sign was? What about your first red flag? 

#RareDiseaseDay #RareDiseaseDay2021 #CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

The treatment path and recovery plan can look very different between CES members. What therapy have you found the most helpful? Has it been a combination of multiple therapies?

Warrior

The treatment path and recovery plan can look very different between CES members. What therapy have you found the most helpful? Has it been a combination of multiple therapies? 

#CaudaEquinaSyndrome #CaudaEquinaFoundation #CES #CESWarrior #CEF
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Jane Cheryl(@dunkleyjane1) 's Twitter Profile Photo

Closed now until Monday. Might make like Irene & Gladys and have a cider- er visit a gallery! πŸ˜‰ &gladys @ Blank Canvas Ossett instagram.com/p/B7tR1Scg6si/…

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CEFCOMMUNITY(@CEFCommunity) 's Twitter Profile Photo

For those of us battling winter here are a few tips for surviving this cold weather!
❄️❄️❄️
Is there anything you find helpful that you don't see on this list?

Warrior

For those of us battling winter here are a few tips for surviving this cold weather! 
❄️❄️❄️
Is there anything you find helpful that you don't see on this list? 

#CES #CEF #CESWarrior #CaudaEquinaSyndrome #CaudaEquinaFoundation #Winter
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