Grateful to have a place at the discussion/work table with professionals who care deeply about the patients they serve.
Edel O'Toole Paller Lab
#StopPCPain

Grateful for excellence science and support of our IPCC Symposium at #SID2024 and the progress we are making to #StopPCPain

Thanks SID for the opportunity to exhibit and network at #SID2024 . More researchers and physicians are now aware of PC Project and our mission to #StopPCPain .

Highlights from the 20th International #Pachyonychia Congenita Research Symposium
# #StopPCPain

Tomorrow, Feb 29, is #RareDiseaseDay , the day people globally shine a spotlight on diseases like PC that don’t get the attention they need. PC Project is the only organization in the world 100% focused on painful PPKs. Learn how to help: pachyonychia.org/rare-disease-d…

#StopPCPain

This is a quote from a PCer’s spouse in the UK. PC pain plays a part in everyday life for people all over the world. What is your experience with PC? Let us know in the comments.

#StopPCPain #RareDisease #Pachyonychia #Pain

Why Alicia supports and gives to PC Project!

Donate here: hope.pachyonychia.org/en-US/donate_p…

#Pachyonychia #RareDisease #StopPCPain

Diamond Code baseball team has partnered with PC Project for the sports team’s Code For A Cause program to raise awareness and support for PC.
The PC community will be cheering for your success this season, on and off the field.

#Pachyonychia #RareDisease #StopPCPain

Thank you Edel O'Toole , for raising the visibility of PC on an international stage. It's because of presentations like these that PC is becoming more recognizable in the clinic. #StopPCPain #pachyonychia #RareDisease

Join us either live or virtually with the @‌SocInvestDerm meeting in Dallas for two free research symposia, plus a special dinner for all attendees. Learn more, see our fabulous lineup of speakers, and register: pachyonychia.org/2024symposiums/

#Pachyonychia #RareDisease #StopPCPain

Excellent science awaits at the 20th IPCC Symposium and the inaugural Darier Hailey-Hailey Disease Symposium. Register today for the symposia and our special dinner. pachyonychia.org/2024symposiums/

#Pachyonychia #RareDisease #StopPCPain

Join us as we celebrate 20 years of serving patients by empowering research to improve their lives. Register for our symposium AND the Inaugural Symposium for Darier’s and Hailey-Hailey Disease at the SID in Texas.
pachyonychia.org/2024symposiums/
#Pachyonychia #RareDisease #StopPCPain

Thanks to all who donate to PC Project to fund critical research to #StopPCPain

Reminder of our Town Hall! Register today to submit your questions and receive the Zoom link for the meeting. pachyonychia.org/pc-town-hall-m…

#Pachyonychia #RareDisease #StopPCPain

Looking forward to gathering with our PC community (and anyone interested) and seeing your faces on Zoom while we learn from our experts who are graciously giving of their time to answer our questions. Edel O'Toole Pierre Coulombe #StopPCPain #Pachyonychia #RareSkinDisease

We are thrilled to listen to our IPCC Chair, Eli Sprecher, at the 20th IPCC Symposium and the inaugural Darier Hailey-Hailey Disease Symposium. Register today for the symposia and our combined dinner. pachyonychia.org/2024symposiums/

#Pachyonychia #RareDisease #StopPCPain

Our Town Hall meeting is tomorrow! Register today to submit your questions and receive the Zoom link for the meeting. pachyonychia.org/pc-town-hall-m…

#Pachyonychia #RareDisease #StopPCPain

We highlight the excellent work in this article about stress keratins, with special recognition to Pierre Coulombe and Erez Cohen, both friends of PC Project.

cell.com/iscience/fullt…

#Pachyonychia #RareDisease #StopPCPain

We invite you to explore our new interactive table with the most current listing of PC mutations in the International Pachyonychia Congenita Research Registry. See the chart on the data page of our website. pachyonychia.org/pc-data/

#Pachyonychia #StopPCPain #RareDisease

What are the steps to join the PC patient registry?

Learn more and join (or refer your patients with painful PPK) to the International Pachyonychia Congenita Research Registry:pachyonychia.org/patient-regist…

#Pachyonychia #RareDisease #StopPCPain