1 in 25 children in the UK are affected by a life-altering #geneticdisorder . Please support jeans_for_genes & sign up or donate today! 👉 jeansforgenes.org
#geneticdisorder #geneticcondition #JeansforGenesDay #wearjeanschangelives #GDUK 👖💙🧬
3 weeks dose done ivvaltitho 😁 ( weekly 1 dose )
#vihaankrishna #cysticfibrosis #cysticfibrosis life #raredisease #geneticcondition
தந்தையின் பாசப் போராட்டம்
news7tamil.live | #GeneticCondition | #HomeCaboratory | #China | #News7Tamil | #News7Tamil Update
In 2017, Mackenzie Casella died at seven months of age from a #genetic condition for which her parents were unknowingly #genetic carriers. The Government would soon fund a large national research study named after Mackenzie. #MackenziesMission
Read more: mdpi.com/2075-4426/12/1…
Watch Kathryn Chapman speaking at our meeting last month.
She has a #GeneticCondition , & used #IVF / #PGD to conceive embryos free of the condition, but could only carry one pregnancy herself & needed #surrogacy to have a 2nd child.
Full video of meeting - andrewpercy.org/appg-surrogacy…
Did you know? Down syndrome is not a disease. People with Down syndrome are not ill and do not “suffer” from the condition.
#DidYouKnow #DownSyndrome #facts #personfirst #individual #notadisease #geneticcondition #education #chromosome #T21 #inclusion #inclusion matters #SEND
1 in 25 children in the UK are affected by a life-altering #geneticdisorder . Please support jeans_for_genes & sign up or donate today! 👉 jeansforgenes.org
#geneticdisorder #geneticcondition #JeansforGenesDay #wearjeanschangelives #GDUK 👖💙🧬
So our little podcast was beaten by the BBC COVID19 podcast but hey! we had a wonderful evening at #MJAawards . So proud to have been there.Also 1:7 of those journalists probably get #migraine so just by turning up we may have raised awareness! #geneticcondition #notjustaheadache
9-yr-old Creed always had to carry a flashlight, even in his #lunchbox so he could see his food. A rare #geneticcondition meant he couldn't see except in #brightlight . After #genetherapy Bascom Palmer Eye Institute, Creed can see. bit.ly/2L2rh1C #vision #eyehealth #LeberCongenital
ജനിതക രോഗത്തിന് മുന്നിൽ തളരാതെ ജീവിതം പോരാട്ടമാക്കി സേബ സലാം
#SebaSalam #GeneticCondition
To anyone with a #GeneticCondition who gets this virus can I urge you #LiveJustToSpiteThem . Govt want us gone so they can close our benefit claims, dont give them the satisfaction. You know, as I do that they hate us. Use your hate of the Tories to power your recovery! FIGHT!
Living with alpha- #thalassemia doesn't have to be a journey taken alone.
Check out the first-ever #guidelines from @TIF_thalassaemia for managing this #geneticcondition and find comprehensive support and information.
👉 bit.ly/48mY1Ms
#Thalassemia #KnowledgeIsPower 📚
Photographed here are blisters and erosions on the dorsal hand and fingers in hereditary coproporphyria. Learn more on our updated DermNet page here: dermnetnz.org/topics/heredit… #geneticcondition #dermatology
How do you describe Marfan or a related condition? How do you help people around you understand what it means?
#AwarenessFeelsGood #AwarenessFeelsGood #Marfan #Marfan Syndrome #ConnectiveTissue #RareDisease #LDS #LoeysDietz #VascularEDS #VEDS #KnowTheSigns #GeneticCondition
I often find myself apologising to strangers in conversation for costing the #taxpayer too much because of my poor #health & my #disability . I've been made to feel guilty for inheriting a #GeneticCondition , like I had a choice in it. I shouldnt have to feel that way! #IHateTories
What is Stargardt Disease? It is expected to impact over 8,000 people in the UK. And Macular Society are researching into the already licensed drugs for Stardargt Disease. ow.ly/8hrv50Qtub3
#StargardtDisease #SightScotland #SightLoss #GeneticCondition
“The Buzz” Show: Stealth BioTherapeutics Corp. (NASDAQ: $MITO) Orphan Drug Designation EMA
#Medicine #Drug #Drug Designation #EuropeanMedicinesAgency #Disease #GeneticCondition #Therapeutics #Disease s #mitochondrialDysfunction
In 2020 Jeans for Genes was proud to help fund Down Syndrome Training and Support Service's early development groups. Here Yousef shows us what he has learnt at the group which he attends regularly with his mum.
#wearjeanschangelives #J4G #geneticcondition #signup