🚨 IT’S RARE DISEASE DAY! 🚨

Don't forget we have moved to Genetic Alliance UK. All day long we will be amplifying the voices of the rare, genetic and undiagnosed community across the UK.

See you over there to see what else we have coming up over the day.

Do you live in the UK and have a child with a #GeneticDiagnosis in one of the #genes listed in the image?

Help understand how rare #genetic syndromes affect how children grow, their physical health and development by taking part in the GENROC study. ow.ly/skr650OY7OW

We've moved! 🚨

Are you missing our Rare Disease Day posts? Then don't forget to give Genetic Alliance UK a follow. Genetic Alliance UK is the charity that runs Rare Disease UK. We've joined accounts to ensure that you don't miss out on any aspect of the work we do across our brands.

Our work can change lives!

In 2024, we want to promote more opportunities to expand newborn and population screening in line with international best practice.

Please donate today to help us continue our vital work.
👉 ow.ly/12Q150QiCmU
#NewbornScreening

*** This page will stop being updated on 15 December 2023 ***

Don’t worry though - follow Genetic Alliance UK now and you won’t miss any of our news, updates, blogs and opportunities.

*** This page will stop being updated on 15 December 2023 ***

Follow us now at Genetic Alliance UK to continue getting updates on our work, our brilliant member organisations and the #rare #genetic communities they support.

We can't believe it's only 86 days away! 🤯

GO GO GO.

Get your tickets here: ow.ly/7AYO50PYe9B

A useful Q+A about managed migration to Universal Credit with Contact Advisers from their Family Finance Team is about to start.

Link below

Thank you for everyone who listened to our presentation. We have lots of ways you can get involved in #RareDiseaseDay .

Get in touch if you'd like to support our campaign.

It's your last chance to WIN!

Get your raffle tickets to help us support the 3.5 million people in the UK living with a #RareDisease .

🚗 You could win a car in time for Christmas! thegreatchristmasraffle.com/customRafflePa…

*** This page will stop being updated on 15 December 2023 ***

Although this page won’t be updated, you can still keep up to date with our news, opportunities, policy/research work and blogs from our community by following Genetic Alliance UK now.

Come along to hear Genetic Alliance UK talk all things #RareDiseaseDay 2024 and see how you can get involved in their campaign!

ticketsource.co.uk/wales-gene-par…

This #GivingTuesday , support Genetic Alliance UK vital work to champion the rights and needs of the 1 in 17 people living with a rare, genetic or undiagnosed condition in the UK.

Together we can transform care coordination & get a good diagnosis for all.
ow.ly/AqPv50QbSoj

Thanks for joining us for our presentation

*** This page will stop being updated on 15 December 2023 ***

Don’t worry though - follow Genetic Alliance UK now and you won’t miss any of our news, updates, blogs and opportunities.

We are very happy to hear about a new project to develop a pathway for children with rare conditions to access individualised therapies.

You can see Genomics England's announcement here: ow.ly/L6Pt50QaKmw
Genomics England MHRAgovuk Oxford-Harrington Rare Disease Centre ABPI

There is an opportunity for 60 patient advocates to get their fee waived to attend #ECRD2024 online.
Applications for fee waivers must be received by 12:00 CET on Friday 24 November – that's TOMORROW!

👉 rare-diseases.eu/fee-waivers/

Can you believe that there are only 100 days until #RareDiseaseDay 2024?

Follow Genetic Alliance UK to see how you can get involved in the campaign. Is there anything you'd like to see us do for the next big awareness day?

Watch the official #RDD24 video now ow.ly/7W3m50Q9RkF