Reminder: This Friday, 5/3 at 1:00pm ET - Renegade Research & #MEAction Network bring you this Clinican's roundtable with Todd Davenport - Clinican's can earn 1 CME credit.
Register at: us06web.zoom.us/webinar/regist…
#MedTwitter #MECFS #longcovid #IACI

Reminder: This Wednesday, 5/1, 1:00 pm ET #AMA with Dr. IleneRuhoyMDPhD & Dr. Kaufman. They are back to answer questions. If you have not already, watch the first clinician's roundtable: youtu.be/6v4XgzOi5TY?fe…
Register at: youtu.be/6v4XgzOi5TY?fe…
#MECFS #Longcovid #IACI #MedTwitter

Awesome @renegaderes RemissionBiome MECFS/LongCovid Self-Experiment Research Roundtable today with ImYoo David Brown, Rob Phair, Andrew Grimson, carrie dalton Katrin Boniface Richelle Sepulveda Nick Melia Isabel Ramirez-Burnett and many more!

The recording will be posted soon.

Thanks to N🤗VA ME-CFS/POTS/LC/FMS etc Support Group for the screenshot.

Research Roundtable recording!

Single-cell immune profiling results from before, during, and after Tess Falor, Ph.D. | @RemissionBiome took Amoxiclav.

youtu.be/182ddFFdfr0?fe…

A new paper came out about glutamate, #MECFS , & #LongCovid .

sciencedirect.com/science/articl…

It made me realize that it's been almost a year since Katrin Boniface's epic glutamate thread!

twitter.com/KatBoniface/st…

Isabel Ramirez-Burnett Nick Melia Richelle Sepulveda

Join us and ImYoo this Thursday (April 11) at 10am PT/1pm ET to hear more about Tess Falor, Ph.D. | @RemissionBiome's single-cell immune profiling results!

Register: us06web.zoom.us/webinar/regist…

Renegade Research

I'm honored to be part of this amazing community-driven event with Isabel Ramirez-Burnett! Thanks for including us. 🙏

We will share about patient/caregiver/community-led research. We're all at the forefront. Many have paved the way. 🙌🏻 RemissionBiome MECFS/LongCovid Self-Experiment Renegade Research Renegade Research -- #TheNicotineTest

We're very excited to announce the next speakers 📣

Tess Falor (Tess Falor, Ph.D. | @RemissionBiome) and Isabel Ramirez-Burnett (@isabelRamirezRD) are from Renegade Research (@RenegadeRes), a non-profit, decentralized organization at the forefront of patient-led research. Renegade Research is also

It would be a lot easier to stick to people who are in the US, mild, & can fully pay.

We could have done that w/ RemissionBiome MECFS/LongCovid Self-Experiment based on the 500+ applicants.

We have been told many times that we should have done that ... That it doesn't make sense to not start off easier.

This is at the core of Renegade Research - we have experienced being left out/behind, either by severity or lack of resources. Equity (not equality) is true fairness. “You have not lived until you have done something for someone who can never repay you” Humanity is all of us!

Results coming soon. 🙌🏻

The thread describing what this study #TheAcidTest is: twitter.com/tessfalor/stat…

#TheAcidTest

So very thankful to have been able to witness the birth of this concept & see it brought to life by Giorgia Lupi & the amazing team at Pentagram Design

This exponential change can bring about exponential decay of suffering.

People (patients) at the core of it all!

Tess Falor, Ph.D. | @RemissionBiome

Giorgia Lupi and team have designed the brand identity for Remission Biome, the radical new patient-centered healthcare organization. pentagram.com/work/remission…

Huge thanks to Giorgia Lupi and her team at Pentagram Design for creating this beauty for RemissionBiome MECFS/LongCovid Self-Experiment! ❤️

Check out our new website created by Ana Sofia Pinho Meder Omuraliev Andrew Boland Shelley Jules

RemissionBiome.org

New ❤️ project out!⁣⁣⁣
⁣⁣⁣
Incredibly excited to have supported the amazing folks at RemissionBiome MECFS/LongCovid Self-Experiment with the launch of their brand identity - it’s a project that is very dear to me, having been dealing with #longcovid for a long time.⁣⁣⁣

pentagram.com/work/remission…

You are invited to join Renegade Research for this webinar on Friday, April 19, 2024 :

Renegade Research #Clinician 's #Roundtable with Vicenç Gilete and Amy Hyde Smith. After registering, you will receive a confirmation email with details and a link to join.

us06web.zoom.us/webinar/regist…

This is an excellent opportunity to discuss the topic #CCI #MEspine Dr. Gilete is the only one in Europe who has years of experience. Unfortunately, in Germany, not anyone has an open ear for it. Although many are affected. #Roundtable RemissionBiome MECFS/LongCovid Self-Experiment Sit At The Table™ (est. 2011) Tess Falor, Ph.D. | @RemissionBiome

It's free and although it's targeted towards clinicians, everyone can join. Patients, caregivers, researchers, anyone interested in learning about structural neurological conditions.

#MECFS #MEspine #LongCovid #hEDS #Ehlersdanlos #EDS #CCI #TetheredCord

RemissionBiome MECFS/LongCovid Self-Experiment

.Isabel Ramirez-Burnett & I met Vicenç Gilete & Amy when we were in Spain. They are doing great work & are kind & compassionate. Amy chatted w/us for like an hour about their process after my appt w/Dr. Gilete.

This is going to be a great Renegade Research Clinician's Roundtable!

Register:

Renegade Research #Clinician 's #Roundtable with Dr. V. Gilete and Amy Hyde Smith - Friday, April 19, 2024

us06web.zoom.us/webinar/regist…

#cranial #cervical #thoracic #lumbar #spine #infection #chronic #ME #LC #IACI #craniocervical #chiari #eaglesyndrome #thoracic #tetheredcord