TIF(@thalassaemiaTIF) 's Twitter Profileg
TIF

@thalassaemiaTIF

A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.

ID:1926071761

linkhttp://www.thalassaemia.org.cy/ calendar_today02-10-2013 07:40:28

2,7K Tweets

6,5K Followers

5,9K Following

TIF(@thalassaemiaTIF) 's Twitter Profile Photo

A novel medicine, SP-420, is currently being tested in a Phase II (THAL-01) as a potential for in adult with transfusion-dependent ß- (TDT).

➡️ thalassaemia.org.cy/clinical-trial…

A novel medicine, SP-420, is currently being tested in a Phase II #clinicaltrial (THAL-01) as a potential #treatment for #ironoverload in adult #patients with transfusion-dependent ß-#thalassaemia (TDT). ➡️ thalassaemia.org.cy/clinical-trial…
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What an enlightening experience at in Stockholm! 🇸🇪 European Society of Endocrinology (ESE)

Dr. Maddalena Casale shone a spotlight on endocrine challenges for those with and Ms. Sawsan Ghzal shared vital insights at the booth.👉 shorturl.at/8ZGjw

What an enlightening experience at #ECE2024 in Stockholm! 🇸🇪 @ESEndocrinology Dr. Maddalena Casale shone a spotlight on endocrine challenges for those with #thalassaemia and Ms. Sawsan Ghzal shared vital #patientadvocate insights at the #TIF booth.👉 shorturl.at/8ZGjw
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Parc olympique(@parcolympique) 's Twitter Profile Photo

Ce soir, la Tour sera rouge pour la journée internationale de la Thalassémie, un groupe de maladies du sang causées par une production d'hémoglobine anormale.

Organisme (site Web anglais) : Fondation de Thalassémie du Canada
thalassemia.ca

Ce soir, la Tour sera rouge pour la journée internationale de la Thalassémie, un groupe de maladies du sang causées par une production d'hémoglobine anormale. Organisme (site Web anglais) : Fondation de Thalassémie du Canada thalassemia.ca
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Bristol Myers Squibb España & Portugal(@BMSIberia) 's Twitter Profile Photo

🗓️ Nos sumamos al para visibilizar a toda la comunidad de que sufren este trastorno sanguíneo hereditario

🩸 Se estima que más de 100 millones de personas en todo el mundo portan genes responsables de la

🗓️ Nos sumamos al #DíaInternacionalDeLaTalasemia para visibilizar a toda la comunidad de #pacientes que sufren este trastorno sanguíneo hereditario 🩸 Se estima que más de 100 millones de personas en todo el mundo portan genes responsables de la #Talasemia #BMSIberia
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

As the curtains close on the TIF & 1st RAIN Summit in , we're overjoyed by the synergy created! 🤝 To everyone who added their unique pulse to this event: Thank You!

Special shout-out to our for fueling our mission! Agios Vertex Pharmaceuticals Bristol Myers Squibb

As the curtains close on the TIF #CBW2024 & 1st RAIN Summit in #Romania, we're overjoyed by the synergy created! 🤝 To everyone who added their unique pulse to this event: Thank You! Special shout-out to our #sponsors for fueling our mission! @AgiosPharma @VertexPharma @bmsnews
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📢 Calling all health stakeholders! Join & WFH at our special during on May 31st.

🌐 Let's advance the conversation on and help tackle the !

🔗 Register now: thalassaemia.org.cy/news/join-tif-…
World Health Organization (WHO)

📢 Calling all health stakeholders! Join #TIF & @wfhemophilia at our special #SideEvent during #WHA77 on May 31st. 🌐 Let's advance the conversation on #NovelTherapies and help tackle the #AccessChallenge! 🔗 Register now: thalassaemia.org.cy/news/join-tif-… #Health4All @WHO
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Salvador Payán-Pernía 🇵🇸(@salvadorpayan) 's Twitter Profile Photo

🩸Con motivo del , en organizamos un encuentro virtual con pacientes con para abordar algunos de los últimos avances y otras cuestiones de interés. Alheta.spain @sehh_es
Inscripción: aa-hh.org/events/convers…

🩸Con motivo del #InternationalThalassemiaDay2024 #ITD2024, en #REDSUR organizamos un encuentro virtual con pacientes con #talasemia para abordar algunos de los últimos avances y otras cuestiones de interés. @Alhetaspain @sehh_es Inscripción: aa-hh.org/events/convers…
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Thrilled to share that the Maldivian Thalassaemia Society, a member of the family, has been honoured by President Dr Mohamed Muizzu for their exceptional 30-year contribution to supporting individuals with in the .
🏅🇲🇻bit.ly/3ylte6i

Thrilled to share that the Maldivian Thalassaemia Society, a member of the #TIF family, has been honoured by President @MMuizzu for their exceptional 30-year contribution to supporting individuals with #thalassaemia in the #Maldives. 🏅🇲🇻bit.ly/3ylte6i
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

Getting excited for the upcoming for in ! bit.ly/3QGdMrD

Huge props to Agios for supporting this educational milestone – your commitment to therapies is making a real difference.

Getting excited for the upcoming #CapacityBuildingWorkshop for #Thalassaemia in #Bucharest! bit.ly/3QGdMrD Huge props to @AgiosPharma for supporting this educational milestone – your commitment to #raredisease therapies is making a real difference. #ThankYou #Sponsors
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

If you have your own snapshots of local landmarks lit up for , please share them with us at:
[email protected]

A detailed compilation of the illuminations will be presented in the forthcoming official report! (2/2)

If you have your own snapshots of local landmarks lit up for #InternationalThalassaemiaDay, please share them with us at: thalassaemia-cs@thalassaemia.org.cy A detailed compilation of the illuminations will be presented in the forthcoming official #ITD2024 report! (2/2)
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

It was truly inspiring to see our community's enthusiastic participation in the initiative, which turned numerous iconic and around the world red in honour of . (1/2)

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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

Huge shout out to Bristol Myers Squibb for supporting 's Capacity Building Workshop in ! bit.ly/3QGdMrD

Their commitment to is helping shape a better future for those with . Discover their impactful work: bms.com

Huge shout out to @bmsnews for supporting #TIF's Capacity Building Workshop in #Bucharest! bit.ly/3QGdMrD Their commitment to #healthcareinnovation is helping shape a better future for those with #thalassaemia. Discover their impactful work: bms.com
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

Expressing our gratitude to Vertex Pharmaceuticals for their remarkable support as of the Capacity Building Workshop for Patients & HCPs. 👉bit.ly/3QGdMrD

For a glimpse into Vertex's innovative world, visit: vrtx.com

Expressing our gratitude to @VertexPharma for their remarkable support as #sponsors of the #TIF Capacity Building Workshop for #Thalassaemia Patients & HCPs. 👉bit.ly/3QGdMrD For a glimpse into Vertex's innovative world, visit: vrtx.com #CBW2024
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OMEGAlive(@OMEGAlivecy) 's Twitter Profile Photo

Στα σκαριά Εθνική Στρατηγική για το Αίμα: Η ΕΕ δίπλα στους αιμοδότες και την ασφάλεια και επάρκεια του αίματος
omegalive.com.cy/eu-matters/eu-…

Στα σκαριά Εθνική Στρατηγική για το Αίμα: Η ΕΕ δίπλα στους αιμοδότες και την ασφάλεια και επάρκεια του αίματος #cyprus #eu omegalive.com.cy/eu-matters/eu-…
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

⏰ COUNTDOWN ALERT!
Get set for a transformative experience at the Capacity Building Workshop & 1st RAIN Summit, from 16-19 May!

Immerse in empowering sessions on & . Final Programme OUT NOW - Don't miss out! 🚀 thalassaemia.org.cy/.../tif-patien…

⏰ COUNTDOWN ALERT! Get set for a transformative experience at the #TIF Capacity Building Workshop & 1st RAIN Summit, from 16-19 May! Immerse in empowering sessions on #HaemoglobinDisorders & #RareAnaemias. Final Programme OUT NOW - Don't miss out! 🚀 thalassaemia.org.cy/.../tif-patien…
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

Today, we celebrate , a tribute to the tireless heroes who are the heartbeat of our .

You nurture, heal, comfort, and stand on the front lines with a resilience that inspires us all! 💝

Today, we celebrate #InternationalNursesDay, a tribute to the tireless heroes who are the heartbeat of our #healthcaresystems. You nurture, heal, comfort, and stand on the front lines with a resilience that inspires us all! 💝 #IND2024 #Nurses #HealthcareHeroes #ThankYou
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

The showcased by our members, partners, and the broader community on has been amazing!

Heartfelt thanks to each one of you for being the heartbeat of this and propelling us closer to our goal of !

The #unity showcased by our members, partners, and the broader #thalassaemia community on #ΙnternationalThalassaemiaDay has been amazing! Heartfelt thanks to each one of you for being the heartbeat of this #movement and propelling us closer to our goal of #TreatmentForAll!
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TIF(@thalassaemiaTIF) 's Twitter Profile Photo

Δημοδιογραφική Διάσκεψη της Εθνικής Επιτροπής Θαλασσαιμίας με αφορμή την Παγκόσμια Ημέρα Θαλασσαιμίας και θέμα τις σύγχρονες εξελίξεις στη διαχείριση της και των .

🇨🇾
Michael Damianos

Δημοδιογραφική Διάσκεψη της Εθνικής Επιτροπής Θαλασσαιμίας με αφορμή την Παγκόσμια Ημέρα Θαλασσαιμίας #ITD2024 και θέμα τις σύγχρονες εξελίξεις στη διαχείριση της #θαλασσαιμίας και των #αιμοσφαιρινοπαθειών. #ΕΕΘ #Κύπρος 🇨🇾 @MichaelDamianos
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