TIF
@thalassaemiaTIF
A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.
ID:1926071761
http://www.thalassaemia.org.cy/ 02-10-2013 07:40:28
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5,9K Following
A novel medicine, SP-420, is currently being tested in a Phase II #clinicaltrial (THAL-01) as a potential #treatment for #ironoverload in adult #patients with transfusion-dependent ß- #thalassaemia (TDT).
➡️ thalassaemia.org.cy/clinical-trial…
What an enlightening experience at #ECE2024 in Stockholm! 🇸🇪 European Society of Endocrinology (ESE)
Dr. Maddalena Casale shone a spotlight on endocrine challenges for those with #thalassaemia and Ms. Sawsan Ghzal shared vital #patientadvocate insights at the #TIF booth.👉 shorturl.at/8ZGjw
🗓️ Nos sumamos al #DíaInternacionalDeLaTalasemia para visibilizar a toda la comunidad de #pacientes que sufren este trastorno sanguíneo hereditario
🩸 Se estima que más de 100 millones de personas en todo el mundo portan genes responsables de la #Talasemia
#BMSIberia
As the curtains close on the TIF #CBW2024 & 1st RAIN Summit in #Romania , we're overjoyed by the synergy created! 🤝 To everyone who added their unique pulse to this event: Thank You!
Special shout-out to our #sponsors for fueling our mission! Agios Vertex Pharmaceuticals Bristol Myers Squibb
📢 Calling all health stakeholders! Join #TIF & WFH at our special #SideEvent during #WHA77 on May 31st.
🌐 Let's advance the conversation on #NovelTherapies and help tackle the #AccessChallenge !
🔗 Register now: thalassaemia.org.cy/news/join-tif-…
#Health4All World Health Organization (WHO)
Great kick off for the TIF Capacity Building Workshop for #Thalassaemia #Patients and #HCPs in #Bucharest with a plethora of attendees joining from Europe and beyond!
#CBW2024 #CapacityBuildingWorkshop #Education #PatientEmpowerment
🩸Con motivo del #InternationalThalassemiaDay2024 #ITD2024 , en #REDSUR organizamos un encuentro virtual con pacientes con #talasemia para abordar algunos de los últimos avances y otras cuestiones de interés. Alheta.spain @sehh_es
Inscripción: aa-hh.org/events/convers…
Thrilled to share that the Maldivian Thalassaemia Society, a member of the #TIF family, has been honoured by President Dr Mohamed Muizzu for their exceptional 30-year contribution to supporting individuals with #thalassaemia in the #Maldives .
🏅🇲🇻bit.ly/3ylte6i
Getting excited for the upcoming #CapacityBuildingWorkshop for #Thalassaemia in #Bucharest ! bit.ly/3QGdMrD
Huge props to Agios for supporting this educational milestone – your commitment to #raredisease therapies is making a real difference.
#ThankYou #Sponsors
If you have your own snapshots of local landmarks lit up for #InternationalThalassaemiaDay , please share them with us at:
[email protected]
A detailed compilation of the illuminations will be presented in the forthcoming official #ITD2024 report! (2/2)
It was truly inspiring to see our community's enthusiastic participation in the #BringThalToLight initiative, which turned numerous iconic #landmarks and #monuments around the world red in honour of #InternationalThalassaemiaDay . (1/2)
Huge shout out to Bristol Myers Squibb for supporting #TIF 's Capacity Building Workshop in #Bucharest ! bit.ly/3QGdMrD
Their commitment to #healthcareinnovation is helping shape a better future for those with #thalassaemia . Discover their impactful work: bms.com
Expressing our gratitude to Vertex Pharmaceuticals for their remarkable support as #sponsors of the #TIF Capacity Building Workshop for #Thalassaemia Patients & HCPs. 👉bit.ly/3QGdMrD
For a glimpse into Vertex's innovative world, visit: vrtx.com
#CBW2024
⏰ COUNTDOWN ALERT!
Get set for a transformative experience at the #TIF Capacity Building Workshop & 1st RAIN Summit, from 16-19 May!
Immerse in empowering sessions on #HaemoglobinDisorders & #RareAnaemias . Final Programme OUT NOW - Don't miss out! 🚀 thalassaemia.org.cy/.../tif-patien…
Today, we celebrate #InternationalNursesDay , a tribute to the tireless heroes who are the heartbeat of our #healthcaresystems .
You nurture, heal, comfort, and stand on the front lines with a resilience that inspires us all! 💝
#IND2024 #Nurses #HealthcareHeroes #ThankYou
The #unity showcased by our members, partners, and the broader #thalassaemia community on #ΙnternationalThalassaemiaDay has been amazing!
Heartfelt thanks to each one of you for being the heartbeat of this #movement and propelling us closer to our goal of #TreatmentForAll !
Δημοδιογραφική Διάσκεψη της Εθνικής Επιτροπής Θαλασσαιμίας με αφορμή την Παγκόσμια Ημέρα Θαλασσαιμίας #ITD2024 και θέμα τις σύγχρονες εξελίξεις στη διαχείριση της #θαλασσαιμίας και των #αιμοσφαιρινοπαθειών .
#ΕΕΘ #Κύπρος 🇨🇾
Michael Damianos