Rett-perheiden päivä Heurekassa! 🤩
#teamjaakkola #rettinoireyhtymä #perhe #vertaistuki #rettsyndrome #kommunikointi
October is #RettSyndromeAwarenessMonth
DYK💜Rett syndrome #RTT is often misdiagnosed as #autism , #CerebralPalsy or non-specific developmental delay. Researchers are empowering RTTfamilies to be involved as partners in research
More info International Rett Syndrome Foundation 🔗rettsyndrome.org/about-rett-syn…💜
Congrats to Rand Pecknold and Quinnipiac Men's Ice Hockey for their 1st NCAA Hockey Championship! Forever grateful for their support of International Rett Syndrome Foundation and everything they have done for the Rett community!
We’re pleased to share that the U.S. FDA has granted RMAT designation for TSHA-102 in Rett syndrome. This supports us on our mission to bring a potentially transformative #genetherapy to all patients and families living with #Rettsyndrome . $TSHA ir.tayshagtx.com/news-releases/…
For anyone sticking it out to the very end of SfN, stop by and see Amanda Vanderplow, PhD present a project that I’m super excited about! International Rett Syndrome Foundation Loyola University Chicago
It's pretty cool that PharmaTher Holdings Ltd. (OTCQB: PHRRF) (CSE:PHRM) received
5 FDA orphan drug destinations for #ketamine
1. #RettSyndrome
2. Ischemia-reperfusion injury
3. Status Epilepticus
4. #ALS
5. Complex Regional Pain Syndrome
$PHRRF $PHRM
#RettRedefined just a reminder. Many of our girls and boys are nonverbal but that just means they do not speak with their mouth. They are EXTREMELY speaking with their EYES. #RettSyndrome .
🧬 We are delighted to announce our #coty for 2023: Reverse Rett, a patient advocacy and research organisation focused on delivering treatments and a cure for #RettSyndrome .
🤝 Throughout the year, we'll host many fundraising events, so help us to help them to make a difference.
Just a sweet photo of my sister Jess (who has Down syndrome) with my son (who has Rett syndrome) and my husband (Victor Meldrew syndrome 🙂) taken by another of my sisters this morning #boyswithrett #DownSyndrome #rettsyndrome #victormeldrew #holdinghands
Today, we announced our full-year 2023 earnings and provided updates on our TSHA-102 #genetherapy program in clinical evaluation for #Rettsyndrome . Learn more: ir.tayshagtx.com/news-releases/…
#RettRedefined just a reminder. Many of our girls and boys are nonverbal but that just means they do not speak with their mouth. They are EXTREMELY speaking with their EYES. #RettSyndrome .
Today we wore purple to raise awareness for #rettsyndrome and also to show support for families in our community for Peel Children's Aid Society #DressPurpleDay . 💜💟 Dufferin-Peel Catholic District School Board #WeAreCalledToLove
Did you know February is #RareDiseaseMonth ? Join us in raising awareness for #RareDiseases ! First up: Rett syndrome by Dr. Christopher Beatty.
NORD International Rett Syndrome Foundation Nationwide Children's Hospital Anup Patel, M.D.
“As a family with a child w/ #RettSyndrome , we have a lot of expenses, so having accessible toys makes a huge difference' #HackingForTheHolidays
This #GivingTuesday , help us deliver 2000 #AssistiveDevices to kids with disabilities. Donate today: ow.ly/Ik2N50Q48JH