As patients, what are our rights to good care and treatment within the #NHS ?
Our guide explains how to go about resolving issues in NHS #haemochromatosis care.
It's free for members in our membership pack.
Join now : haemochromatosis.org.uk/join-us
#MembershipHasBenefits
Next week is #VolunteersWeek - just 1 week to go!
We'll be celebrating all the amazing things our 150 volunteers do for the #haemochromatosis community.
Stay tuned : haemochromatosis.org.uk/volunteering
If you are at #GPCESydney Conference in Sydney please stop by and chat all things #haemochromatosis with us. Hear about the new Australian Haemochromatosis Register, patient resources, accredited CPD, podcasts for health professionals by health professionals and more.
@GPCE
Brainstorming 🧠✨
Which of the following is usually inherited in an #autosomal_dominant pattern?
A. Cystic fibrosis
B. Haemochromatosis
C. Familial adenomatous polyposis
D. Friedrich's ataxia
Maria McNulty from Banbridge gives blood to treat her #haemochromatosis . This thoughtful decision has saved the lives of others right here in #NorthernIreland . Thank you so much Maria and well done on becoming a #lifesaver . Be like Maria - #giveblood , save lives 🩸❤️👏
👋 It's Rare Disease Day!
✅ SHARE supports everyone living with a rare disease, such as haemochromatosis.
😃 Join health research today and help researchers find a cure for a rare disease.
🌟 Register now at registerforshare.org
#RareDisease Day2024 #RareDisease
Join the #LightenTheOverload campaign Keep an eye out for your town's buildings turning RED during World Haemochromatosis Week 1 - 7 June If you spot one snap a pic and share it on our page! 📸 #WHW2024 #lightentheoverload #haemochromatosis #ironoverload #lighting
Have a Great Iron Brew in aid of #Haemochromatosis UK!
Invite friends & family round for tea and cake. Oh the hardship of #Fundr aising !
This is just one of loads of fundraising ideas.
Visit our website for more : haemochromatosis.org.uk/fundraising-id…
#Fundr ...
Vicki Sugden, liver CNS NottsLiver taking today at the Brit Liver Nurses national meeting at the BASL about how person centred care is delivered for people with haemochromatosis
#Haemochromatosis = iron overload in the body. It's more common among people from #northernireland . #blooddonation treats it + saves others’ lives too. Speak to your GP + get our handy GP referral form here bit.ly/44wPxAI 🩸❤️Haemochromatosis UK Public Health Agency #giveblood
#IronOverload can affect children, as well as adults.
Our family forum members helped us develop these unique guides to #haemochromatosis for children & young people.
These guides are available, free for members and schools.
Join now : haemochromatosis.org.uk/jo...
Don’t forget to join us if you are in #Sligo #Leitrim #Roscommon #Donegal tomorrow night Wed 8th May @ 7.30pm The Glasshouse #haemochromatosis Information Evening, free talk and Q&A with Dr Kevin Walsh. Everyone welcome!
Prof John Ryan BeaumontHepatology discussing haemochromatosis diagnosis and management. Known as the Celtic Curse - 1:83 people in Ireland have this condition, the highest incidence globally! Irishliverfoundation Irish Haemochromatosis Association
