Pervez Musharraf(@P_Musharraf) 's Twitter Profile Photo

Message from Family:

He is not on the ventilator. Has been hospitalized for the last 3 weeks due to a complication of his ailment (Amyloidosis). Going through a difficult stage where recovery is not possible and organs are malfunctioning. Pray for ease in his daily living.

Message from Family:

He is not on the ventilator. Has been hospitalized for the last 3 weeks due to a complication of his ailment (Amyloidosis).  Going through a difficult stage where recovery is not possible and organs are malfunctioning. Pray for ease in his daily living.
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Cornerstone Medical Education(@Cornerstone_CME) 's Twitter Profile Photo

As continues to gain landscape-shifting momentum, including at the ongoing , it is our privilege to introduce the 1st Annual ATTR Early-Career Research Forum!

US-based young investigators will share their ATTR research for a chance to…

As #transthyretin #ATTR #amyloidosis continues to gain landscape-shifting momentum, including at the ongoing #HFA2024, it is our privilege to introduce the 1st Annual ATTR Early-Career Research Forum! 

US-based young investigators will share their ATTR research for a chance to…
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Isabel Mattig(@IsabelMattig) 's Twitter Profile Photo

Just wrapped up 3 incredible days at ESC , packed with interessting discussions on our studies of amyloidosis in aortic stenosis & SGLT2 inhibitors in Fabry.🫀Now off to Paris for to present our studies. Cardiology ✈️

Just wrapped up 3 incredible days at ESC #HeartFailure2024, packed with interessting discussions on our studies of amyloidosis in aortic stenosis & SGLT2 inhibitors in Fabry.🫀Now off to Paris for #EuroPCR2024 to present our #TAVI studies. #cantwait #interventional Cardiology ✈️
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JACC Journals(@JACCJournals) 's Twitter Profile Photo

ICYMI: marianna fontana shares 🔑 insights from her paper about the prognostic value of a 6-minute walk test in patients with transthyretin cardiac .

Watch the video 👇 or access the full 📄 here: bit.ly/44zzYtt

Harlan Krumholz

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JACC Journals(@JACCJournals) 's Twitter Profile Photo

SimPub: In -CA, the baseline 6MWT distance can refine risk stratification beyond traditional prognosticators. Worsening of 6MWT at 1 year was common and independently associated with an increased risk of mortality. bit.ly/44zzYtt

#HeartFailure2024 #JACC SimPub: In #ATTR-CA, the baseline 6MWT distance can refine risk stratification beyond traditional prognosticators. Worsening of 6MWT at 1 year was common and independently associated with an increased risk of mortality. bit.ly/44zzYtt #Amyloidosis
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a_concerned_amyloidosis💜🐭🇩🇪(@a_nineties) 's Twitter Profile Photo

look at the dates on the cited studies 😂😂 this section is especially egregious because AZD1222 had an eye-wateringly enormous GBS signal. x.com/a_nineties/sta…

look at the dates on the cited studies 😂😂 this section is especially egregious because AZD1222 had an eye-wateringly enormous GBS signal. x.com/a_nineties/sta…
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Neil Mellor(@NeilMellor33) 's Twitter Profile Photo

My Dad 💔My Hero
I love you 💔 Thank you for everything

19/02/1950💔01/05/2024

We are all absolutely devastated to have lost my Dad.
Big thanks to St Ann’s Hospice and all their brilliant staff who helped during those last days as he battled so hard against amyloidosis 🙏♥️

My Dad 💔My Hero
I love you 💔 Thank you for everything 

19/02/1950💔01/05/2024

We are all absolutely devastated to have lost my Dad.
Big thanks to St Ann’s Hospice and all their brilliant staff who helped during those last days as he battled so hard against amyloidosis 🙏♥️
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Amyloidosis Speakers Bureau(@Amyloidosis_ASB) 's Twitter Profile Photo

ATTENTION to all US-based young investigators working in ATTR!! Submit your abstract by Friday July 19, 2024 to the 1st Annual ATTR-Early Career Research Forum ... chance for two top submissions to win $100,000 each and more! Check it out here:
cornerstonemeded.com/attr-ecrf/

ATTENTION to all US-based young investigators working in ATTR!!   Submit your abstract by Friday July 19, 2024 to the 1st Annual ATTR-Early Career Research Forum ... chance for two top submissions to win $100,000 each and more!  Check it out here:
cornerstonemeded.com/attr-ecrf/
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Isabel Mattig(@IsabelMattig) 's Twitter Profile Photo

Sunrise at the Berlin airport as I depart for Congress. ✈️☀️Excited to present our SAVER study on amyloidosis detection in aortic stenosis & tollerance of SGLT2 inhibitors in Fabry Disease🫀 Cardiology Deutsches Herzzentrum der Charité

Sunrise at the Berlin airport as I depart for #ESC #HeartFailure2024 Congress. ✈️☀️Excited to present our SAVER study on amyloidosis detection in aortic stenosis & tollerance of SGLT2 inhibitors in Fabry Disease🫀 #echofirst #interventional Cardiology @dhzcharite
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Ahmad Masri(@MasriAhmadMD) 's Twitter Profile Photo

We have a name for PRX004 or NNC6019-0001
It is Coramitug - under investigation fibril depleter for by Novo Nordisk - phase II ongoing

We have a name for PRX004 or NNC6019-0001 
It is Coramitug - under investigation fibril depleter for #ATTR by Novo Nordisk - phase II ongoing 
#CardioTwitter #amyloidosis
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Amyloidosis Speakers Bureau(@Amyloidosis_ASB) 's Twitter Profile Photo

Truth. Patients can enrich medical education didactics to bring to life the curriculum from course leaders. Together, everyone benefits.

Truth. Patients can enrich medical education didactics to bring to life the curriculum from course leaders. Together, everyone benefits.
#meded
#MedTwitter
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a_concerned_amyloidosis💜🐭🇩🇪(@a_nineties) 's Twitter Profile Photo

Finished. Moderna crfs are about 3-10x the length each, and i just discovered more crfs in the 12-15 submission, but the 16+ are done. Now comes the hard part!

Finished. Moderna crfs are about 3-10x the length each, and i just discovered more crfs in the 12-15 submission, but the 16+ are done. Now comes the hard part!
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Cardiomyopathy UK(@Cardiomyopathy) 's Twitter Profile Photo

The National Institute for Health and Care Excellence (NICE) has given their approval to a new drug – tafamidis (Vyndaqel) – to treat transthyretin amyloidosis cardiomyopathy (ATTR-CM).

cardiomyopathy.org/news-blogs/lat…

The National Institute for Health and Care Excellence (NICE) has given their approval to a new drug – tafamidis (Vyndaqel) – to treat transthyretin amyloidosis cardiomyopathy (ATTR-CM).

cardiomyopathy.org/news-blogs/lat…
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a_concerned_amyloidosis💜🐭🇩🇪(@a_nineties) 's Twitter Profile Photo

this is what happens when you outsource pharmacovigilance to the pharmaceutical company 😅i wouldn't bother CONFIRMING any of those reports either. why even list them at all if they're not CONFIRMED? isn't serious disease CONFIRMATION enough? infuriating

this is what happens when you outsource pharmacovigilance to the pharmaceutical company 😅i wouldn't bother CONFIRMING any of those reports either. why even list them at all if they're not CONFIRMED? isn't serious disease CONFIRMATION enough? infuriating
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