Deaf Awareness Week
#endNF2 #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family #nf2 warrior #LetstalkNF2
#nf2 charity #nf2 gene #nf2 chromosome22 #nf2 research #nf2 ismyteam #nf2 awarenessday #nf2 journey #StrongerTogetherAgainstNF2
#BeDeafAware #Deafness #NF2Deafness

We have BSL fingerspelling from Oscar today for #SignLanguageWeek
If you want to take part send us your video.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family #nf2 warrior #LetstalkNF2 #BSL
#nf2 charity #StrongerTogetherAgainstNF2

Sunday on the blog as we catch up with Avastin Diaries from Easter.
Just a short and sweet this week.
nf2biosolutions.org/2024/04/17/ava…

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family #nf2 warrior #LetstalkNF2
#nf2 charity #nf2 cure #nf2 treatment

This blog post contains all the links to the Avastin Diaries Series so far as well as reflections from Joanne Ward, author of this important series.
nf2biosolutions.org/2024/04/17/ava…

Coming up tomorrow, we start Year 2 of Avastin
#endNF2 #NF2awareness #NF2Schwannomatosis
#NF2support #nf2

We are #NF2Aware Are You?
Join our campaign, print your poster and be #NF2Aware
Print your poster here> nf2biosolutions.org/wp-content/upl…
Take a pic, Send us a copy!
#endNF2 #NF2awarenessday #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family #nf2 warrior #LetstalkNF2

You may have noticed that each Cranial Nerve is numbered using roman numerals. Today we look at the function of Cranial Nerves IV, V & VI.

Thankyou to Kim for this info! Very interesting read.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family

We were delighted to announce our new trustees in February. We are now thrilled to share more details about them with you.
You can find the details of all the trustees, Ambassadors and volunteers here on our website:
nf2biosolutions.org/nf2-biosolutio…
#endNF2 #trustee #NF2Schwannomatosis

We are supporting Rare Disease Day 29th February 2024 - Support us by sharing rare disease day posts.
We will be sharing our hugely popular series 'How NF2 Affects me', it would be fantastic for likes, comments and shares.
#endNF2 #NF2awareness #NF2Schwannomatosis
#NF2support

Sunday on the blog so it must be story time and we share Elena's story today whose Son Victor has NF2.
nf2biosolutions.org/2023/12/18/vic…
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2 family #nf2 warrior #LetstalkNF2
#nf2 charity #nf2 cure #nf2 treatment

Rare Community Profiles: A Mother-Son Pair Discuss the Importance of Wellbeing in Managing NF2-Related Schwannomatosis (NF2) bit.ly/4cD1tGd #NF2 Schwannomatosis #NF2 #Neurofibromatosis #Neurofibromatosis Type2 #Schwannomatosis #RareCommunityProfiles