Summit 2 Sea For MND(@Summit2Sea4MND) 's Twitter Profile Photo

Meet the team taking part in the Summit2Sea Challenge on Saturday, 20th April 2024

Check out Gareth from the Foyle Paddlers Canoe Club, who is taking part on Saturday, 20th April 2024!

Please donate what you can
idonate.ie/fundraiser/Sum…

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Neurological Conditions Implementation Group(@NCIG_NHSWales) 's Twitter Profile Photo

Thank you South Wales MND Care Network for hosting an engaging symposium yesterday, presenting on and discussing MND research in Wales. Despite the challenges faced, its exicting to see what the research so far has discovered!

Thank you @SWMNDCN for hosting an engaging symposium yesterday, presenting on and discussing MND research in Wales. Despite the challenges faced, its exicting to see what the research so far has discovered! 
#MND #mndresearch
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Summit 2 Sea For MND(@Summit2Sea4MND) 's Twitter Profile Photo

team meeting with Adrian yesterday in Moville.

The coastline and hillwalking GPS trackers have all arrived.

112 trackers are now on their way around the country.



idonate.ie/fundraiser/Sum…

#summit2sea4mnd team meeting with Adrian yesterday in Moville.

The coastline and hillwalking GPS trackers have all arrived.

112 trackers are now on their way around the country.

#Adrianslegacy #endmnd #mndresearch 

idonate.ie/fundraiser/Sum…
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Daniel A(@meadowcopse) 's Twitter Profile Photo

Another return through the countryside on a train from London.
12 months as a volunteer on a 'remote motor unit number estimation' MND research project at King's College Hospital.
Again,talented and engaging young researchers working on a way forwards.
King's College Hospital Research MND Research

Another return through the countryside on a train from London.
12 months as a volunteer on a 'remote motor unit number estimation' MND research project at King's College Hospital.
Again,talented and engaging young researchers working on a way forwards.
@KCH_Research @mndresearch
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#teamedinburgh #DoddieAid(@EdinDoddieAid) 's Twitter Profile Photo

Beating MND is always going to be a team effort. Just like on the rugby field, we all have our part to play in getting the ball over the try line.

Thank you to every single person who took part in Doddie Aid 2024 💙💛

2024 Research

Beating MND is always going to be a team effort. Just like on the rugby field, we all have our part to play in getting the ball over the try line.
‌
Thank you to every single person who took part in Doddie Aid 2024 💙💛

#DoddieAid2024 #DoddieAid #DoddieWeir #MND #MNDResearch
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ALS Uncensored 🏴‍☠️(@ScottsFight) 's Twitter Profile Photo

I know the idea of reversal is controversial, to say the least. There is no doubt that there are a lot of charlatans out there. I’ve met and looked into the eyes of 3 reversals. It’s pretty clear that they have healed.

I know I feel my body trying to heal sometimes. Don’t

I know the idea of #ALS reversal is controversial, to say the least. There is no doubt that there are a lot of charlatans out there. I’ve met and looked into the eyes of 3 reversals. It’s pretty clear that they have healed.

I know I feel my body trying to heal sometimes. Don’t
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MND Research(@mndresearch) 's Twitter Profile Photo

The world of clinical trials can be a daunting place.

Here is an ongoing thread of some of the key terms and abbreviations to help de-mystify clinical trials 🧵⬇️

The world of clinical trials can be a daunting place.

Here is an ongoing thread of some of the key terms and abbreviations to help de-mystify clinical trials 🧵⬇️

#ClinicalTrials101
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Patients United2EndMND(@united2endmnd) 's Twitter Profile Photo

A drug locked away from MotorNeuroneDisease yet readily available from NHS for other conditions & shown provisionally to delay death in . Confirmation is needed but why is Trial Consortium developing a drug different from the trial drug? united2endmnd.org/2024/05/14/mir… Neuroscience Institute

A drug locked away from @MNDPatients yet readily available from NHS for other conditions & shown provisionally to delay death in #MND. Confirmation is needed but why is #Mirocals Trial Consortium developing a drug different from the trial drug? united2endmnd.org/2024/05/14/mir… @neuroshef
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A View From My Camera(@ViewFromCamera) 's Twitter Profile Photo

Beating MND is always going to be a team effort. Just like on the rugby field, we all have our part to play in getting the ball over the try line.

Thank you to every single person who took part in Doddie Aid 2024 💙💛

2024 Research

Beating MND is always going to be a team effort. Just like on the rugby field, we all have our part to play in getting the ball over the try line.
‌
Thank you to every single person who took part in Doddie Aid 2024 💙💛

#DoddieAid2024 #DoddieAid #DoddieWeir #MND #MNDResearch
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David Setters(@dsetters) 's Twitter Profile Photo

If results are confirmed (hopefully in June - see myname5doddie.co.uk/whats-on/artic…) we need to find fastest routes for MotorNeuroneDisease to access the drug. Consortium SEEM to be going down a slow route. Answers please MND Association Neuroscience Institute SussexNeuro QM Neuroscience MND Research

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MND Research(@mndresearch) 's Twitter Profile Photo

Up to 50% of people with can experience changes to thinking and behaviour.

Researchers want to talk to people with MND and caregivers to hear their experiences of testing for these symptoms and help inform how they are assessed.

More info⬇️

mndassociation.org/research/get-i…

Up to 50% of people with #MND #ALS can experience changes to thinking and behaviour.

Researchers want to talk to people with MND and caregivers to hear their experiences of testing for these symptoms and help inform how they are assessed.

More info⬇️

mndassociation.org/research/get-i…
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MND Research(@mndresearch) 's Twitter Profile Photo

In some both the participants and researchers know who is receiving the treatment and placebo.

This is an open-label trial.

These trials can help gather safety data, but any potential benefits need to be confirmed in a blinded trial.

In some #clinicaltrials both the participants and researchers know who is receiving the treatment and placebo.

This is an open-label trial.

These trials can help gather safety data, but any potential benefits need to be confirmed in a blinded trial.

#ClinicalTrials101
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