#IamNumber17 So proud of Anna, my amazing little Changemaker..she was delighted to see her photo at the launch of the Rare disease Awareness campaign in CHQ Dublin today..she made a few new changemaker friends too🤩🌈🥰 iamnumber17.ie
Last month, we had the privilege of attending the phenomenal #IAmNumber17 campaign launch. Inspiring Changemaker stories and a sense of community empowerment were just some of the highlights! Let's keep raising awareness and support for those 1 in 17 living with #RareDisease
The majority of individuals living with rare disease report having felt anxious, stressed, and/or depressed due to their condition. Support the #IAmNumber17 campaign and help us be heard to #ElevateCareForRare . iamnumber17.org.uk/elevate-care-f…
In the UK, 1 in 17 people are affected by rare diseases. We're proud to join the 'I Am Number 17' Campaign at Parliament. Our team met inspiring advocates like June & Blessing, raising awareness for sickle cell. Thanks for having us! #RareDisease #IAmNumber17 #SickleCell
The majority of individuals living with rare disease report having felt anxious, stressed, and/or depressed due to their condition. Support the #IAmNumber17 campaign and help us be heard to #ElevateCareForRare .
My interview with RTÉ News for the #iamnumber17 campaign. I couldn’t be prouder of everyone involved 👏🏻👏🏻👏🏻
RARE Ireland
Rare Diseases Ireland
Takeda
Despite the substantial impact of rare disease on individuals & their families, they often go unnoticed. Lack of awareness means patients need to educate themselves about their condition and act as their own advocates and activists.
Help us #ElevateCareForRare #IAmNumber17
It often takes years of tests, hospital appointments and misdiagnoses for a patient with a rare disease to receive a proper diagnosis, which can have a considerable emotional impact on patients and caregivers.
Help us #ElevateCareForRare #IAmNumber17
1 in 17 people in the UK will be affected by a rare disease at some point in their lives, which is why I'm proud to support the #IAmNumber17 campaign.
We must #ElevateCareForRare , to ensure that the 1 in 17 get the care and support they need.
Lack of awareness increases the burden on patients to equip themselves with knowledge of their condition and become their own advocates and activists.
Help us #ElevateCareForRare #IAmNumber17 iamnumber17.org.uk
It often takes years of tests, hospital
appointments and misdiagnoses for
a patient with a rare disease to
receive a proper diagnosis, which
can have a considerable emotional
impact on patients and caregivers.
Help us #ElevateCareForRare
#IAmNumber17
I was honoured to be asked to represent one of 17 changemakers who lives with a rare disease - the blood disorder ITP in my case. 1 in 17 people in the Ireland will be affected by a rare disease at some point in their lives . #IAmNumber17 campaign launching today
It’s been a while since I’ve been in here. In town to talk #GuillainBarreSyndrome #CIDP and rare conditions as part of the #IAmNumber17 campaign #ElevateCareForRare
People living with rare disease must often manage their own care. The burden of care coordination can create pressures across the lives of patients, their families and carers.
Help us #ElevateCareForRare #IAmNumber17 Alström Syndrome UK Gene People MPS Society UK, here for those with rare diseases Ataxia and Me CIO 1184030 UKPIPS
Rare disease awareness campaign launched today with 17 inspiring change makers, 1 in 17 people in Ireland have rare disease - we all know somebody affected, I advocate for more research to understand rare diseases better #IamNumber17 RARE Ireland University of Galway CMNHS
Despite the substantial impact #RareDisease can have on individuals and their
families, they often remain obscure. Lack
of awareness increases the burden on
patients to equip themselves with
knowledge ........
Help us #ElevateCareForRare
#IAmNumber17
iamnumber17.org.uk
