Ehlers-Danlos - Day 30 🦓 #EDS #EDS Awareness #EDS AwarenessMonth #Headache #EhlersDanlosSyndrome #Hypermobility #POTS #MCAS #ChiariMalformation #Dysautonomia
#IntercranialHypertension #Dislocations #Subluxation #ConnectiveTissue #ZebraStrong #JointDamage #InvisibleDisability

iCCaRE Consortium celebrates Ehlers-Danlos Syndromes and Hyper-mobility Spectrum Disorders Month.

Ehlers-Danlos Syndromes and Hyper-mobility Spectrum Disorders Month a month dedicated to raising awareness for people worldwide with these complex, multisystemic conditions.

May is Ehlers-Danlos Syndrome Awareness Month! About 1/3 of individuals with #POTS have EDS, most often the hypermobile type. We are funding the first study to try to identify the biological mechanisms that link EDS & POTS. You can support this study at CurePOTS.org.

The Seventy-seventh World Health Assembly has adopted a groundbreaking resolution that emphasizes the importance of involving patients and communities in healthcare planning. Key points include:

🌍 Social Participation: Promoting public involvement to build trust and address

Après une blessure majeure à la cheville en '18, 2 orthopédistes ont insisté pour que je voie un physio, sûrs que c'est pour ça que je ne guérissais pas...
Ma #physio : 'C'est inutile, je replace et c'est déjà déplacé le temps que tu sortes d'ici!'
#EhlersDanlos

As we close out May, we should out to The Ehlers-Danlos Society and the important work they do supporting people and families affected by Ehlers-Danlos Syndrome (EDS) or Hypermobile Spectrum Disorder (HSD). #ehlersdanlosawareness #EhlersDanlos #edsaustralia

Intimacy is a beautiful expression of love, and having a disability like Ehlers Danlos Syndrome doesn't change that. Communicate with your partner, explore different positions, and use assistive devices if needed.

#EhlersDanlosSyndrome #WickedSensualCare

This edit i posted a while ago which was meant to b a selr insert, the songs actually about ehlers danlos syndrome!! I thinkt hats so cool

Dr Joshua Walinjom Dx :Ehlers-Danlos Syndrome (EDS)

The cardiovascular manifestations in EDS are
a)Mitral valve prolapse is a common cardiac manifestation in classical and hypermobile EDS.
b)Aortic root dilation in vascular EDS leading to aortic dissection or rupture.
c)Tricuspid valve

Last night, City of Worcester's City Council passed a Proclamation recognizing Hypermobility Spectrum Disorder and Ehlers-Danlos Syndromes Awareness Month!

They let me speak on why it is so meaningful to me for this Proclamation to be approved. To read what was my full statement

vEDS.
It's genetic. You can't see it. You can't cure it. You just adapt .
You also have to explain to people why you look normal, yet walk like you are crippled or drunk.
Do I look disabled to you?
#vixensexpressions #GypsyWings #gypsywings111 #EmpowerWomen #ehlersdanlos #pain

Javier started to have symptoms around the age of 5 with bruises that did not disappear (mainly on his legs, from the knees down), wounds from minor blows, and difficulty healing. Throughout his childhood he struggled with symptoms, not knowing what he had or how to treat it.

this month is ehlers danlos syndrome awareness month! ehlers danlos syndrome (aka eds) is a genetic condition that affects your collagen. i made an awareness post on instagram and it would mean so much if you guys could maybe read and share? thank you 🫶🏻🦓 instagram.com/p/C7XqoAUoezq/…

The Pelvic Disorders Working Group of the International Consortium on Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), has collaborated on a comprehensive publication of guidelines tailored for healthcare professionals, and individuals with hypermobile

Vascular Ehlers-Danlos Syndrome (VEDS) affects the body’s connective tissues and is primarily characterized by fragile blood vessels, skin, and internal organs.
#VEDS is a lifelong disease, but the complications are often treatable.
Learn more:
studies.science37.com/navigating-the…

Read Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM's article here: maternityandmidwifery.co.uk/guidelines-for…

May is Ehlers-Danlos Syndrome Awareness month. It is a condition that may affect a significant number of people considering pregnancy.

#ehlersdanlossyndrome

Ehlers-Danlos Support UK

I'm so close to finishing my goal of walking 100km for Ehlers-Danlos Support UK! If you want to help motivate me for the last 10km, you can donate here: justgiving.com/page/grainger-…

I'd love to hit £500 by the end of the month 😍
#ehlersdanlos #edsawarenessmonth

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders. Connective tissue is found throughout the body and is an important component of the skin. Problems with connective tissue can cause changes in the skin.

People with EDS may have skin