▶️In this video from the 2023 Family Conference, Dr. Theresa Strong discusses clinical trials in PWS, which ones are underway, and what it looks like when your loved ones are in a clinical trial. #PraderWilli
fpwr.us/49PoUJq

✨We're collecting stories of hope, strength, and determination in our loved ones with PWS. Share your story with the PWS community. #PraderWilli fpwr.us/49qtGNn

🥇'I wish the doctor had told me all the things my daughter with PWS will REALLY never do: She never gives up. She never backs down from a challenge,' says Amber. Read her story of hope. #PraderWilli fpwr.us/49uEE4v

💖'The Cure For Us Is a Lot of Things: How Young People with Prader-Willi Syndrome View Themselves and Future Clinical Trials' is a unique study where people with PWS share their hopes and struggles. #PraderWilli #Research fpwr.us/3Jwzril

📹'What Is Prader-Willi Syndrome?' This video includes valuable information for parents and caregivers of children and adults with PWS. Watch it and share with others. #PraderWilli fpwr.us/49wiC1x

🧠One of the most exciting recent developments in the PWS research world is vagus nerve stimulation (VNS), a small device that may help curb temper outbursts and disruptive behaviors. #PraderWilli #Research fpwr.us/3TRtFML

🌎Thanks to the insights of nearly 900 families in the Global PWS Registry, scientists understand much more about the sleep disorders, seizures, and psychiatric behaviors of people with PWS. #PraderWilli fpwr.us/3TUI1ft

🧸Does your child with PWS experience sensory processing issues? In this video Janice Agarwal, a pediatric physical pherapist and PWS mom, discusses ways to help improve sensory integration for children with PWS. #PraderWilli fpwr.us/49xcki7

Hyperphagia, or persistent hunger, is a common and challenging condition in kids with PWS. Our guide helps give you a better understanding of what to expect and how you can best help your loved one manage hyperphagia symptoms. #PraderWilli fpwr.us/3JceY1X

🎉Jessica worried about her sons when her daughter was diagnosed with PWS. Now those brothers are their sister's biggest cheerleaders. #PraderWilli fpwr.us/49thcos

🌱One of our first recommendations after a new PWS diagnosis is to begin growth hormone therapy. Research supports its benefits for PWS treatment, and it has a consistently reassuring safety profile. fpwr.us/49D9Z5m

Our PWS Mental Health Guidebook was prepared by gathering information from extensive one-on-one interviews with caregivers whose loved ones experienced mental health and severe behavioral challenges. #PraderWilli fpwr.us/3JceYit

✨'The amount of love and light he has brought to our lives is immeasurable,' says Rebecca, mother of Bron, who has PWS. Read their story of hope here: #PraderWilli fpwr.us/3xyk5qQ

💗'In just 11 years of our PWS life, families around the world like us have made the decision not to be passive bystanders,' says Lisa, host of One SMALL Step fundraisers for PWS research. #PraderWilli fpwr.us/4as5MSW

Want to learn about the most current findings on Schaaf-Yang syndrome? In this video from the 2023 Conference, Dr. Christian Schaaf explains our understanding of Schaaf-Yang syndrome to date and the direction of current studies. #SYS fpwr.us/3TRtzVp

🌎Are you registered in the Global PWS Registry? This secure database is a platform for patients around the world to share information about PWS on developmental history, medical complications, and quality of life. #PraderWilli fpwr.us/4axarTN

👀Do you ever find yourself looking for a clear, easy explanation of Prader-Willi syndrome? Our free PWS slide deck is for you. #PraderWilli fpwr.us/3JaqSta

Skin picking is a common behavior in individuals with PWS, affecting almost 70% of participants in the Global PWS Registry. It can lead to injuries, scarring, and even infections. Learn more about the causes and potential treaments: #PWS #Prade ...
fpwr.us/4cPvHWo

🧚🏾‍♀️Thanks, Tooth Fairy! Scientists are studying the baby teeth of children with PWS to learn about the risk of autism spectrum disorder. #PraderWilli fpwr.us/4aPC36b

In this 2023 conference video, Dr. Joanna Wrede discusses the spectrum of sleep disorders most commonly seen in children with Schaaf-Yang Syndrome, as well as treatment options and sleep hygiene recommendations. #PraderWilli #SchaafYang
fpwr.us/4aH8t2R