Supposing #Mirocals results are +ve, could you please make your views & plans for MotorNeuroneDisease to access low-dose Proleukin ASAP public, MND Association King's MND Centre SussexNeuro Neuroscience Institute QM Neuroscience? Can you help us get transparency MND Scotland My Name'5 Doddie Foundation? Darby Rimmer MND Foundation #MND

Want to know more about NHS Continuing Healthcare funding-CHC? Join MND Association friendly online Peer Support Group today-11AM. Email chcMND Associationiation.org for link. CHC process can be daunting but very worthwhile if successful MotorNeuroneDisease share experiences & point to help & info

The @Opti_cals clinical trial explores the impact of tailored nutrition of people with MND, aiming to boost quality of life and survival.

Currently seeking participants in the UK, learn more about this innovative intervention and how to get involved!
mndassociation.org/research/get-i…

Craig raises a massive point in this interview. The psychological impact of this disease is just as devastating as the physical impact. My wife and I, were left to drive home half an hour after receiving my diagnosis and didn’t hear from anyone in the health service for three…

A message from Kev to all of #TeamMND taking part in Rob Burrow Leeds Marathon and Leeds Half Marathon today 🫶

Last Friday Patients United2EndMND asked UK #Mirocals Consortium members if MND Association Neuroscience Institute King's MND Centre QM Neuroscience @Sussexneuro would terminate contract with #Iltoo united2endmnd.org/2024/05/10/pat… Still no reply to Darby Rimmer MND Foundation Geoff Burrow Rob Burrow CBE Ed Slater & Marcus Stewart.

Yes WHY is there still no news for the IL-2 Trial data results ?

Seems all that people are interested is about “Fundraising” ? So, if data not released soon - then maybe no more fundraising until released 🤷‍♂️

Still time to show your support for high profile patients' letter to MND Association King's MND Centre Neuroscience Institute QM Neuroscience SussexNeuro We need transparency on commercial arrangements on #Mirocals so regulators & health professionals concentrate on fastest pathways to @MNDpatient access

Sadly we are still waiting for pivotal #mirocals low dose interleukin 2 trial results. No update this week but have added new page to website showing history going back over a year of campaigning just to get the results! (1/2) &

#united2endmnd #als #mnd

united2endmnd.org/mirocals-histo…

It's been 19 days since patients wrote to Tanya Curry MND Association to ask questions regarding their concerning choice of commercial partner. Still no answers to questions we have been asking for over a year. The deal did nothing to get Proleukin to patients. We want to know why.

Given the crossover with #mnd I've signed Dementia UK's letter to party leaders urging them to put dementia on the agenda this election.

Please do add your name if you get a moment.

Dementia UK #PutDementiaOnTheAgenda action.dementiauk.org/sign-letter-pa…

A reminder that our deadline for research funding applications is Friday 10th May

#attackmnd
#darbyrimmerMNDfoundation

Visit our website for more information or check our bio links

Still time to show your support for high profile patients' letter to MND Association King's MND Centre Neuroscience Institute QM Neuroscience SussexNeuro We need transparency on commercial arrangements on #Mirocals so regulators & health professionals concentrate on fastest pathways to @MNDpatient access

If you haven't added your name to Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Marcus Stewart & partners & Geoff Burrow's open letter to the Mirocals consortium please do.

We have waited too long for the results of a 200 person trial that ended nearly 2 years ago.

#united2endmnd

#TheSeekers ' late Judith Durham lost her husband, Ron Edgeworth, to #MND in 1994. MNDA Merseyside made a collection when they played the Royal #Liverpool Philharmonic Hall #otd 2014.

Tragically, the @LiverpoolPhil also lost their Principal Trumpet, Rhys Owens, to #MND in 2022.

Please share MNDA South London Branch Bruce Aitchison Happiness is Egg Shaped Challenging MND Mind Over MND. MNDA Merseyside MNDACheshire MNDA CARDIFF & VALE A View From My Camera 🏔️ Paul @ Munros 4 MND 🏔️ Reading & West Berks MNDA MND Association - South Lancs Branch MND Association | Northern Ireland MNDA West Yorkshire MNDANorwichWaveney All About Alie Ian Pratt MNDF Stand Against MND

I've #justsponsored Jonathan Holland, who's fundraising for West Sussex North on JustGiving. Donate now justgiving.com/page/jonathan-…

Please add your signature to letter to Mirocals Consortium members from our high profile patient colleagues here united2endmnd.org/2024/04/30/wou… Clear answers should help speed access to life prolonging drug for MotorNeuroneDisease if +ve provisional results are confirmed. Please share.

We're tagging other charities that support research to ensure that they're aware of this issue, which could affect them too:
Cancer Research UK Policy MND Association Dementia UK Parkinson's UK British Heart Foundation Diabetes UK Alzheimer's Society Prostate Cancer UK Teenage Cancer Trust The Brain Tumour Charity 40TUDE LifeArc