Join #ALS Advocates across the nation in fighting for new treatments and a cure for #ALS .
Sign up to be an advocate TODAY: als.org/advocate
#ALS Advocacy

We join the world in mourning the loss of basketball legend Bill Walton. Bill had a huge heart and supported people living with ALS and the fight against ALS. He was on hand to help honor Stephen Kauffman, who is living with ALS, into the NBA Basketball Hall of Fame and supported

Are you looking for an opportunity to engage in thought provoking discussions that will shape the future of ALS advocacy, research, and care? No matter how you are connected to #ALS , we encourage you to join us at ALS Nexus this July.
Register today: als.org/als-nexus

My ALS Journey™ is an interactive, web-based tool that allows people with ALS to take control of their journey. Users can browse articles, view videos, and find other helpful information specific to any stage of their disease. Get Started: myalsjourney.org

May is National #ALS AwarenessMonth .

Spread the word about the National #ALS registry to help give researchers the tools to determine what causes #ALS .

Join the Registry today: bit.ly/3WwRH2L

The federal #ALS research funding process for next year's budget has started. Cuts to research funding are on the table so contact your members of Congress TODAY!

Tell Congress to increase ALS research funding NOW: als.quorum.us/campaign/Incre…

#ALS Advocacy #FundALSResearch #EndALS

Expanding access to vital assistance programs and services that offer much-needed support and hope to families battling #ALS is critical to making it livable for everyone, everywhere, until we can cure it.
Read more: als.org/blog/lets-see-…

#ALS AwarenessMonth #IceBucket10

We’re excited to participate in the Accelerating Medicines Partnership Amyotrophic Lateral Sclerosis (AMP ALS) program, along with the Foundation for the National Institutes of Health, NIH’s National Institute of Neurological Disorders and Stroke, ALS Finding a Cure, ALS TDI, AnswerALS, I AM ALS and countless

How can we increase the number of clinical trials for ALS and make them better and faster? Join us at ALS Nexus as we will welcome Erin Fleming, Vice President of Research and Development at ProJenX, Director of the Center for NeuroGenetics at the FLORIDA Laura Ranum, Eduardo

Only ONE WEEK left to share your insights into clinical trials and treatment needs through the latest #ALS Focus survey. Your responses will help convey the urgent needs of the #ALS community and improve future trials. Take the survey TODAY: alsfocus.org!

Has your wheelchair ever been lost or damaged while flying? Did you have challenges getting it repaired?

If you fly to receive medical treatment, have flight issues ever impacted your treatment?

Share your air travel #flightmares TODAY! bit.ly/flightmares

🎉Victory in Virginia! The FY25-26 state budget includes $750,000 per year for ALS care services! Huge thank you to Governor Glenn Youngkin, L. Louise Lucas, Mark Sickles, and Luke Torian for improving the lives of Virginians living with ALS! 🙌 #ALSAdvocacy

We have another great #WeeklyWebinar coming up this week to continue #ALSAwarenessMonth . Join Drs. Merit cudkowicz & Sabrina Paganoni, MD, PhD as they present updates on the Platform Trial and answer questions from the audience.

Register: partners.zoom.us/webinar/regist…

Calling all people with ALS and caregivers! Take this opportunity to influence #ALS care and research by completing our Clinical Trials and Treatment Needs Survey. Your insights help us better understand the urgent needs of the ALS community. alsfocus.org

Thank you so much Aaron Nola Nola and the Philadelphia Phillies for spreading ALS awareness and supporting the #ALS community!

We look forward to attending I AM ALS Community Summit event and are proud to partner with them in advocating for the ALS community.
You can learn more here:
iamals.org/action/ALSA2024

What is ALS?
ALS is a progressive disease in which a person’s brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. There is no cure for ALS, but there is hope. Learn more: als.org/awareness
#ALSAwarenessMonth

The Senate FAA Reauthorization contains key provisions for improving air travel for people living with #ALS but the deadline to pass it is this Friday!
Urge your U.S. Senators to pass their bill TODAY: als.quorum.us/campaign/49323/

Join NEALS Consortium at 4pm ET TODAY for an overview of the #ALS Better Care Act and discussion of the importance of multidisciplinary care with Dr. Kelly Gwathmey, Dr. Terry Heiman-Patterson, and Dr. Sabrina Paganoni. #ALS Advocacy

Register here: us06web.zoom.us/webinar/regist…

Today at 2pm ET, Mike Quigley and the Congressional #ALS Caucus will host a public briefing to update the ALS community on the latest advancements in ALS research.

Watch Working to End ALS: The State of Research and Care in the U.S. livestream here: youtube.com/watch?v=z_Rjme…