📢 A new agreement between SACFA & @vertexpharma offers Trikafta to some insured #cysticfibrosis patients at no cost to them.

While this is good news & a step forward for some, we have concerns around transparency & access.

Read our full statement ⬇️

Vertex got an award tonight for a breakthrough innovation to treat Cystic Fibrosis.

But with a $326K per patient per year price tag, is it a breakthrough for patients all over the world, or just a privileged few?

Brilliant to see UAEM supporting our calls for global access to Vertex Pharmaceuticals’s lifesaving #CysticFibrosis drugs.

Lifesaving drugs should never be a luxury for the few. 💊🌍

#RightToBreathe #Trikafta4All

Huge thanks to students from UAEM tonight for standing in solidarity with us & #cysticfibrosis patients around the world that are dying without access to lifesaving Vertex Pharmaceuticals drugs. 💊🌍 #RightToBreathe #NoOneLeftBehind
Just Treatment 💊

.Vertex Save Us

29 doctors & scientists from the US and at least eight other countries have signed a letter protesting the outrageous cost of recently approved CF medicine, Trikafta. Vertex Pharmaceuticals drop your prices and prioritize patients now. Just Treatment 💊 Vertex Save Us bostonglobe.com/2024/04/11/bus…

Breakthrough Kim Kardashian Robert Downey Jr Brie Larson there are THOUSANDS of people dying & deteriorating whilst Vertex Pharmaceuticals make OBSCENE profits. They charge 326,000 dollars per pt/per year for a drug that cost less than 6,000 dollars to make!!
#CysticFibrosis
#Greed

We stand with every #CysticFibrosis patient without access to lifesaving drugs. #NoOneLeftBehind

In response to our campaign for global access to #cysticfibrosis meds, we are pleased to update you on discussions with Breakthrough ⬇️

Their commitment aids our fight against Vertex Pharmaceuticals's monopoly, aiming to secure CF drugs for all. #CFWontWait 💊

righttobreathe.net/no-awards-with…

Everyday, @Vertexpharma’s greed costs #cysticfibrosis patients’ lives. Scientific innovation means nothing if it doesn’t reach the people who need it. Withhold Vertex’s Breakthrough until CF drugs are accessible to all!

Janco, South Africa & Vihaan, India need #trikafta NOW

We are shocked & saddened that the Breakthrough is giving Vertex Pharmaceuticals an award whilst their exorbitant drug pricing means that many #CysticFibrosis patients are left to suffer and die without access.

There can be no celebrations without access for all. 💊🌍 #CFCantWait

Rose Keller, a 22 year old P4ADNOW patient advocate living with cystic fibrosis, shared her experience with high prescription drug prices as she introduced President Biden today in New Hampshire.

Cheri Nel has a blunt message for the multibillion-dollar pharmaceutical company Vertex Pharmaceuticals :

“Any person that dies from today – that’s on you.”

#CysticFibrosis patients & families are fighting back. 💊🌍

#RightToBreathe #NoOneLeftBehind
Kat Lay

theguardian.com/global-develop…

A shout out to all women in our amazing #CysticFibrosis community on #InternationalWomensDay , whether patient, family member or advocate.

Together we are strong, resilient & determined - we will not give up until ALL our loved-ones have access to the medicines they need. 💊🌍

🌍A historic legal battle is underway in South Africa.

#CysticFibrosis patients are challenging Vertex Pharmaceuticals's monopoly in court, to access to the lifesaving drug Trikafta - currently priced at $326k.

Read our blog to find out more:
righttobreathe.net/post/south-afr… #RightToBreathe

Listen in to CapeTalk radio today as Dr Marco Zampoli and Tim Ball from Webber Wentzel discuss the legal case between South African CF patients and Vertex.

‘Legal Talk’: 14:10 - 14:30 (SA time).
Livestream: primediaplus.com/station/capeta… #CysticFibrosisSA #RightToBreathe

Great webinar last night attended by 220+ #SouthAfrican #CysticFibrosis families on how to join a legal case to win compulsory licences which would help them access life-saving CF drugs.
Vertex Pharmaceuticals should be ashamed for denying them access, but they are fighting back! 👊💊🌎

✴️ URGENT: Call to all South African #CysticFibrosis patients!

Join the landmark legal case to win access to life-saving CF medication, Trikafta.

Join our webinar tomorrow to find out more: bit.ly/SA-CF-case

💥💥URGENT CALL to South African #CysticFibrosis patients 💥💥

Join the landmark case to gain access to life-saving CF medication #Trikafta .

Together we can win!

Sign up to our webinar to find out more: bit.ly/SA-CF-case

🗓️ 29th February
🕖 7pm (SAST)

#RightToBreathe