#ESCPrev2024 was another proof that integrating patient perspective talks from #ESCPatientForum into scientific sessions works 👌 and is a win-win 🙌 Thanks so much for having us #ESC_Prev 🙏 Looking forward to repeat in Milan 2025! 😃 Prof Lis Neubeck European Society of Cardiology EAPCPresident

Fabulous talk from #ESCPatientForum member Richard Mindham on the very important topic of anxiety and worrying in patients with CVD 👌Prof Lis Neubeck European Society of Cardiology Susanne S. Pedersen Mattias Van Heetvelde

Patient perspective at #ESCPrev2024 on rhythm monitoring
Inga Drossart
🫀 all kinds of data available with monitoring & used by patients
🫀love this graphic of time in “selfcare”far exceeds time with doctor
🫀 using rhythm monitoring responsibly!

Very much looking forward to this session today at 11:30, room 3 😃Thanks to the organizers for the very cool topic 🙏😎 See you there! Dr Anastasia Mihailidou FAHA FCSANZ FESC Panteleimon Papakonstantinou! #ESCPatientForum Prof Lis Neubeck EAPCPresident European Society of Cardiology

#ESCPatientForum is ready for European Society of Cardiology #ESCPrev2024 starting tomorrow in Athens 💪 Don't miss the sessions with contributions from Anezka, our two Richards and myself ❗We're looking forward to seeing you 😃🤟 Prof Lis Neubeck EAPCPresident Camille Pfaff

You know you live in Belgium when your #EPeeps is disappointed about your ⬇️🍟 consumption 😅 To improve my adherence to EP advice, guess what was for lunch today? 😉🤤 And this only few days before going to European Society of Cardiology #ESCPrev2024 🙈

#ESCPatientForum member Inga Drossart talks about why patients should have a say when it comes to the approval process for innovative devices and how accelerated pathways for their regulation should not come to the detriment of patient safety. 👇

#patientsfirst

#ESCPatientForum monthly call yesterday with a fascinating talk by Dr. Julian Maerz about nucleic acid-based therapeuticals, incl. regulatory and ethical aspects - we learned a lot and want to know more, so Julian kindly agreed come back another time🧑‍🎓😃 Prof Lis Neubeck

#ESCPatientForum delegation on last day of #EHRA2024 (Axel Verstrael, Sharon MacDonald & Jeremy Dwight). We had a blast! 😃 Safe travels home, everyone, and see you in Vienna 2025 🤟

#EHRA2024 🇩🇪
#EHRAMotions with Inga Drossart🇧🇪

“The good physician treats the disease, the great physician treats the patient who has the disease”

👉Patient involvement in guidelines formation
👉What needs improvement in the patient-doctor relationship?
#EHRAPaths #ESCPatientForum

Get ready for #EHRA2024 ! All sessions with #ESCPatientForum contributions are on Sunday, April 7th - we look forward to seeing you 😃 Axel Verstrael EHRAPresident Serge Boveda Andrea Sarkozy

Taking the 'Learning from real cases' session format at #EHRA2024 literally:
I'm presenting my own case on Sunday, April 7 at 17:15 in room 8. Don't miss it, #EPeeps , there will be no recording ❗See you in Berlin 🤟 #ESCPatientForum Serge Boveda Andrea Sarkozy EHRAPresident

As a patient, I dream that wearables can help me manage my daily life in a way where I and my supportive health team are on the same page. Let's all work together to get this job done. 'Just Do It!' 🤟

Inga Drossart World Heart Federation Paul Dendale Gerhard Hindricks Emma Svennberg

New‼️ Easily find all sessions with #ESCPatientForum contributions by ticking the box 'includes a patient perspective' under 'types & tracks' in the programme search! Plenty of opportunities to listen to us - see you in London😃 #ESCCongress European Society of Cardiology Prof Lis Neubeck Stephan Achenbach

For #ESCPatientForum , Axel Verstrael & I will be back at #RadicalHealthFestival this year 😃 Hurry up & book your ticket - we can't wait to see you in Helsinki! 🤟 European Society of Cardiology Radical Health Festival Helsinki Nico Bruining EiC EHJ Digital Health Prof Lis Neubeck Joost Lumens Gerhard Hindricks Emma Svennberg

On #IWD2024 , our #ESCPatientForum member Anežka Gombošová reminds us that appearances can be deceiving. Beneath her youthful exterior lies a heart that defies expectations. Read about her difficult but inspiring journey to motherhood. bit.ly/4bVonIi

#InspireInclusion

Happy International Women's Day! ❤️
#IWD2024 #InspireInclusion European Society of Cardiology

#EHRA2024 is once again an #ESCPatientForum included congress ✅😀 Axel Verstrael, Jeremy Dwight and I will give patient perspective talks on SCD in the family, AF care, and IST. Register now & meet us in Berlin! Andrea Sarkozy Serge Boveda EHRAPresident Prof Lis Neubeck

At first, my only symptom was constant exhaustion but being 14 yrs, I didn't think of my 🫀 Then GP detected tachycardia – but repeatedly refused to act 🥺 Today, I raise awareness for arrhythmias & for not dismissing patients like me 🗣️ #PulseDay #ESCPatientForum #EPeeps

Sharing patient cases on SoMe:
➡️Anonymization alone doesn’t always prevent patient identification.
➡️Patient consent must be specific & explicit; 'for educational purpose' doesn't incl. SoMe.
➡️🙏use respectful language.
#ESCPatientForum P McGreavy Prof Lis Neubeck Nico Bruining EiC EHJ Digital Health