RareDementiaSupport
@RareDementia
We run specialist support group services for individuals living with, or affected by a rare dementia diagnosis including: FAD, FTD, fFTD, PCA, PPA, LBD & YOAD
ID:3543584717
http://www.raredementiasupport.org 04-09-2015 10:05:41
2,0K Tweets
3,5K Followers
1,0K Following
Thank you UCL Business Ltd for promoting our ReadClear app through Inpart to help us build a university partnership: uclb.portals.in-part.com/o2872eLv0Vjk?u…
Developed by UCL Queen Square Institute of Neurology + UCL Neurotherapeutics at UCL ICN + RareDementiaSupport
Supported by The Dunhill Medical Trust Zinc UKRI Healthy Ageing Challenge Janneke van Leeuwen
TenU
We could not be more grateful to be funded by The National Brain Appeal and their incredible work to raise awareness on #raredementias at the 2023 #ChelseaFlowerShow .
Congratulations to The National Brain Appeal and Joy Baker!
This year, we worked with Alzheimer's Research UK Dementia Carers Count Dementia UK RareDementiaSupport Lewy Body Society UK Dementia Research Institute and Young Dementia Network to call on NHS England to publish dementia diagnosis data by subtype. In July, we got that data for the very first time - read more here: theguardian.com/society/2023/j…
New year #Greengross #Changemaker Conversation - hear people with rare dementias in UK & Italy sharing joys of arts. Chair Prof Seb Crutch DRC@UCL, RareDementiaSupport, Cris_Novilunio & Eloisa Stella Sweet Patootee Arts, Monica Boulton - she/her The National Academy for Social Prescribing bit.ly/3u6zDQL
We're delighted to welcome our two newest headliners, John Suchet and Nula Suchet! Dedicated members of the RareDementiaSupport Support Centre Development Committee, thank you for standing with us on our mission to transform the lives of millions with a neurological condition 💙