22Q11 Ireland
@22Q11_Ireland
Parent group raising awareness of #22q
Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
ID:1566409892
http://www.22q11ireland.org 03-07-2013 18:30:17
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'Syndromic children had higher revision rates and were significantly less likely to obtain normal resonance following primary surgery than non-syndromic patients.'
Jane Gunn Aisling O Dwyer Tanya Ward
sciencedirect.com/science/articl…
'Care pathways in childhood neurodevelopmental disorders: Toward greater awareness of KBG syndrome among pediatricians'
Individually rare collectively common #RareDiseases
sciencedirect.com/science/articl…
Early learning is of particular interest to parents of children with LD/ID. Complex care needs extend into the educational realm so this is important to Children's Health Ireland RARE Ireland families also.
National Early Learning and Childcare Agency Consultations npc.ie/news-events/na…