NBIA Disorders Association(@nbia_disorders) 's Twitter Profileg
NBIA Disorders Association

@nbia_disorders

Supporting those affected by Neurodegeneration w/ Brain Iron Accumulation #PKAN #BPAN #MePAN #PLAN #MPAN #FAHN #IdiopathicNBIA #TeamNBIA #findcures

ID:454083899

linkhttp://nbiadisorders.org calendar_today03-01-2012 16:15:10

1,4K Tweets

706 Followers

154 Following

Patricia Wood(@PatriciaVWood) 's Twitter Profile Photo

NBIADA is proud to have nominated Dr. Susan Hayflick for a @globalgenes RARE Champions of Hope award this year for Medical Care and Treatment ! We’ll be tuning in to the virtual watch party on Facebook at 7pm ET. Join us:
facebook.com/events/5814818…

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NBIA Disorders Association(@nbia_disorders) 's Twitter Profile Photo

Put on your nicest (and most comfortable) outfit, gather your friends and family, break out your favorite snack, and join us virtually for the 2021 RARE Champions of Hope Award Ceremony, TODAY Thursday, November 18, 2021.
Click the button below to RSVP facebook.com/events/5814818…

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NBIA Disorders Association(@nbia_disorders) 's Twitter Profile Photo

Join us 11/17 11AM PST: How Can Rare Families Fight Back?” Hosted by us, all rare disease peeps are welcome to participate. 2 NORD directors will discuss global awareness campaigns including Rare Disease Day and the RareAction Network® (RAN). Register now us02web.zoom.us/webinar/regist…

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NBIA Disorders Association(@nbia_disorders) 's Twitter Profile Photo

“An ultra rare kind of love” NBIA DA infinity scarves available now for Mother’s Day. See link in bio. instagram.com/p/CNeYJr4DYEi/…

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NBIA Disorders Association(@nbia_disorders) 's Twitter Profile Photo

Have you ordered our new merchandise yet??? 🤩 🎉

Register for our 2021 Virtual Conference and receive a $10 off promo code to shop!!

Link in bio

instagram.com/p/CNY9-CEjgQw/…

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