MND Campaigns
@mndcampaigns
Campaigning with people with motor neurone disease #MND @mndassoc
Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
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http://www.mndassociation.org/campaigns 06-11-2009 15:42:12
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With the dust settling on the #LocalElections now would be a great time to get in touch with new or existing councillors.
If you'd like support contacting your councillors about #MND , consider becoming a Campaigns Volunteer.
Become a campaigner here 👇
volunteering.mndassociation.org/vacancy/campai…
Big thanks to Samuel Kurtz MS for his written question on how the Welsh Government are supporting research into #MND (motor neurone disease).
You can read the full response from Cabinet Secretary for Health and Social Care Eluned Morgan here 👇
senedd.wales/media/sdjlfpkj…
Last September 🏹 My Nottingham adopted the Motor Neurone Disease Charter which seeks to positively influence the lives of those living with MND and those who care for them. I was proud to speak in support of the motion proposed and seconded by
Today Carers UK and other organisations supporting Carers Week 2024 met with Minister for Social Care Helen Whately to mark the countdown to #CarersWeek .
We discussed Government's support for carers and called for the development of a new and ambitious National Carers Strategy.
Thanks to Justin Madders MP MP for spotlighting his recent visit to the MNDA Wirral group of the MND Association in this weeks debate on Health and Disability Reform.
Read the full debate here 👇
hansard.parliament.uk/commons/2024-0…
We've joined Carers NI and nearly 30 other organisations to write to the Economy Minister Conor Murphy regarding paid carer's leave in #NorthernIreland .
Read more here ⬇️
carersuk.org/press-releases…
To what extent is your quality of life affected by your neurological condition?
Having #MND affects all aspects of a person's life.
Share your own reality in order to help bring change in the current system.
Respond to the The Neurological Alliance survey here ⬇️
neurolifenow.typeform.com/Mar-Apr24?utm_…
Big thanks to Marion Fellows MP for highlighting research from the #SupportMNDCarers campaign in the debate on Carer's Allowance yesterday.
We need the next govt to reform Carer’s Allowance & uplift the rate to a level that reflects the value unpaid #MND carers offer.
Great to see the #ActToAdapt campaign, including work with Hull City Council highlighted in the MND Association Impact Report.
Everyone with #MND should be able to live in an accessible home, without delays or high costs.
Read the full 2023 annual report here👇
mndassociation.org/about-us/who-w…
Making my way to the House of Parliament. Full video available on YouTube. ⬇️
youtu.be/OyQYIKg-JBc?si…
#housesofparliament #london #bournemouth #train #mnd #motorneuronedisease #als