📣 Don't fogret early bird registration is OPEN for the DTRF Int'l Research Workshop on 9/20. Register by May 14th and use code TWWHOUSTON20 to save 20%. Details and hotel information: bit.ly/2024tww

#togetherwewillweekend2024 #DTRF #RFA #desmoid #desmoid research #RFA 24

Last week, DTRF's Lynne Hernandez attended the 2024 Global Genes #RAREDrugDevelopment Symposium. This was a great opportunity to connect with other patient advocates on the similar path of collaborating with stakeholders to find better therapies for their patient communities.

Early Bird Registration is OPEN for the DTRF Int'l Research Workshop on 9/20. Register by May 14th and use code TWWHOUSTON20 to save 20%. Details and hotel information: bit.ly/2024tww

#earlybird #togetherwewillweekend2024 #DTRF #RFA #desmoid #desmoid research #RFA 24

📣 The DTRF is excited to welcome Tom Allen to its Board of Directors. Tom is an attorney in the New York office of Skadden, Arps, Slate, Meagher & Flom, where he has practiced since 2019. Learn more about Tom and the entire Board by clicking here: dtrf.org/about-dtrf/boa…

Established in 2005 by Jeanne Whiting and Marlene Portnoy, the DTRF has made significant progress with the support of patients, caregivers, clinicians, and researchers. Learn more about our impact and how we’re building momentum for the future: dtrf.org/about-dtrf/our…

📣 DTRF 2024 grant cycle is open and dedicated to a planning grant to develop teams and/or preliminary data toward a larger grant to address questions around spontaneous #desmoid tumor regression.
🔗 Please read the RFP guidelines for more information: dtrf.org/research/apply…

Available on-demand: Watch our free #CME program with PlatformQ Health. Review data‐based strategies to achieve an earlier diagnosis for patients with #DesmoidTumors : bit.ly/4a1JMi1

For additional CME programs, visit our site at dtrf.org/clinicians-res….

There is an increased need for fresh desmoid tumor tissue samples for research. If you have a desmoid patient considering surgery, please inform them of our tissue donation program. Online consent prior to surgery via pattern.org is required. dtrf.org/donate-tissue-…

📣 We are so EXCITED. Registration for the DTRF’s “Together We Will” Weekend and RFA Walk are opening soon. We'll be in Houston for the first time and we can't wait to meet you there! Mark your calendars for September 20-22.

🔗 Learn more: dtrf.org/patients-careg…

📣 Call for abstracts to present in-person at the DTRF Int’l Desmoid Tumor Research Workshop, Friday, 9/20/24 in Houston, TX. Abstracts should be emailed to [email protected]. Submission deadline is 5/6/2024.
🔗 dtrf.org/international-…

The DTRF hosted a Scientific and Medical Advisory Board Meeting on Friday, March 29th. We are grateful for the expertise and guidance this team of experts has provided the Foundation over the years.
🔗 dtrf.org/about-dtrf/adv…

Do you have a complex desmoid tumor case you would like to present to a collaborative team of sarcoma specialists? Physicians are encouraged to submit a patient's case ASAP to present at this int'l virtual tumor board on Tues, May 7th at 11:00 am ET. 🔗 dtrf.org/clinicians-res…

Examine the implications of the new ICD-10-CM codes for #DesmoidTumors & get insights from Mrinal Gounder, MD, & Linda Holtzman, MHA, RHIA, CCS, CCS-P, CPC, COC, on how to integrate them into clinical practice and research. Produced with PeerView: bit.ly/47yXLug #MedEd

🗓️ Save-the-date! The DTRF’s “Together We Will” Weekend and RFA Walk will be held in Houston, TX on September 20-22, 2024.
Registration details coming soon!

🔗 dtrf.org/patients-careg…

There is an increased need for fresh #desmoid tumor tissue samples for research. If you have a desmoid patient considering surgery, please inform them of our tissue donation program. Online consent prior to surgery via pattern.org is required. dtrf.org/donate-tissue-…

🆕 15+ new articles from January and February have been posted on the Published Research page of our website.

🔗 Read all the new articles here: dtrf.org/research/publi…

🗓️ Save-the-date! The DTRF’s “Together We Will” Weekend and RFA Walk will be held in Houston, TX on September 20-22, 2024.
Events include DTRF’s Int’l Research Workshop for clinicians and researchers and Patient Meeting for all attendees.
🔗 dtrf.org/clinicians-res…

📣 Call for abstracts to present in-person at the DTRF Int’l Desmoid Tumor Research Workshop, Friday, 9/20/24 in Houston, TX. Abstracts should be emailed to [email protected]. Submission deadline is 5/6/2024.
🔗 dtrf.org/international-…

DTRF Patient Registry & Natural History Study posters, featuring QOL and treatment landscape, were presented at the 2024 ESMO Sarcoma and Rare Cancers Congress in Lugano, Switzerland.
SpringWorks Kelly Mercier, Ph.D IQVIA US ESMO - Eur. Oncology
🔗 dtrf.org/research/confe…